Hi my hubby of 41 years was diagnosed 31march 23
its been such a stressful time for us because for the last 6 months hes had 3 operations to debulk what they said were high displasia cells but the last op they found the tumor and now my hubby faces 6 weeks chemo/radiotherapy and we are so very apprehensive of all the side affects after reading peoples experiences on here
my hubby has been through so much the operations have had their toll on him as he doesn’t do well after and it takes him a while to get over them
he still has a voice all be it very quiet and the surgeon seems certain the treatment will be a definite cure
Just still in limbo a bit at the moment but were strong and i know we will get through this hubby is 62 and never smoked or drank .
Hi. I too was 61 when diagnosed I’m a wimp but I did it 35 radiotherapy and 2 x 10 hour chemo . Where exactly is your hubby’s cancer ! Tell us a little more we might be able to offer more info. My cancer was in my tonsil. It’s hard but doable.
We’re all happy to help. Sorry you’ve found yourself on here.
Hszel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi my hubbys cancer is above the vocal chords from what we can make out
hes been having regular 8 week check ups with the camera down and the debulking of the tissue has now exposed the tumour but its taken 3 operations to find it
the vocal chords are ok and as my hubby is adamant he wants to keep his voice the surgeon is going down this route
my hubby only had a croaky voice which he went to the doctor with this was 5th August last year
we have had our lives on hold really since then as couldn’t arrange holidays or anything because of the check ups
Apparently hubby is an unusual case his swallowing isnt good now and he’s constantly coughing up mucus which i know will probably get worse before it gets better
thanks for replying its all very daunting but at least we have a diagnosis now and can move forward .
Just a side note they think its industrial and paddive smoking as hubby has been around chemicals and gasses during his career and all his family smoked a lot .
Hi there’s also a laryngeal chat Larynx cancer forum
plus will tag a couple of our guys in here . chris2012 snd MikeO who will be able to help.
Stick with us everyone will help.
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi foreverstingfan. I had similar mine was above voicebox. Confirmed Jan 2022. Swallowing and mucus troubles are common and he should be getting help with these.
I had 30 radiotherapy sessions and all went well. I lost my voice for a while but it returned no further treatment and all going OK.
Good luck and trust your team
Thank you for your replies this is all good to know appreciate it .
Good evening Foreverstingfan, sorry to be reading this i had 3 operations in a period of 3 years to chase down my cancer with radio and chemo after my first operation, they were all in the lower jaw area including my voicebox. We all react differently to the treatment and have differences when it comes to the side effects, pain, and recovery, thankfully i did not have really bad side effects but i think it also depends on which area of the mouth is being treated. Through experience reading people's posts here, the tonsil area seems to be one of the worst areas so hopefully he will be like me and not suffer too much. Its great to hear the consultant is confident the treatment will cure the cancer making all the previous operations worthwhile, my consultant was very much like this and never gave up despite the setbacks so it gave me a lot of trust and confidence in him getting a positive result. I also worked in a hazardous environment working in a shipyard welding,etc , smoking and drinking certainly do not help but i think it's hard to pinpoint why certain people get cancer. It sounds as if you both have a positive determined attitude which in my opinion goes a long way, i always adopted the attitude of dealing with things a day at a time accepting i would have good and bad days.I wish you and your husband all the best for the upcoming treatment, take care.
Chris x
P.S has a feeding tube been mentioned or does he have one fitted due to the operations ?
Thank you this is good to know appreciate the info .
Hi chris thanks for your reply its really helpful
no hubby doesn’t have feeding tube and is managing food pretty good to be honest but we think that might change when treatment starts
we are keeping very positive and i know we will get through this
the surgeon has been amazing throughout and we trust him and know this is the right path
thanks again its really appreciated.
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