Aches and pains.

Hi Connor. Are you getting chemo? That would certainly account for aches and pains. Radiotherapy produces its own unique fatigue too. There’s no getting round it. Rest and listen to your body but do try to get out for a short walk if you can. 
On the trust front I completely sympathise. I never ever once gave up faith in my team. My consultant told me that the cancer would take a year away from me but that he would cure me. He wasn’t far off the first and spot on the second. 
What I did lose sometimes was trust in my own body. So I just kicked myself and got  on with it after a therapeutic meltdown and a good weep. 
Lots of folk do get help from their GP though. Sleeping pills if you’re not sleeping, a short course of antidepressants if you need them. 
Macmillan offer six free counselling sessions. I’ll get you the link. 
There’s more than one way to skin a cat. 
Keep going. You’ll get there 

Counselling link

https://www.macmillan.org.uk/cancer-information-and-support/get-help/emotional-help/bupa-counselling-and-emotional-well-being-support

Don’t forget the helpline as well. 
The number is at the bottom of my post. 

thank you Dani I’m glad I’m not the only one who feels that way I’m currently having therapy once a week thanks to macmillian and bupa, I guess I need to trust faith in my team you know what it can like with anxiety sometimes  thank you. X

I’m having chemo once a week and radiotherapy 5 times a week x

Hi Connor I finished my treatment 8 weeks ago for the same cancer, I still get pain mostly in my shoulders but I know its side affects of the treatment. I had 6x chemo and 35 radiotherapy I never thght I would do it, but I surprised myself and got through it. I'm 60 yr old as they say it's doable. Always remember is curable and treatable. Good luck

Hi Connor

I know exactly what you mean about your body letting you down. It is a shock and a nasty surprise after being fit and healthy and then suddenly having something like a cancer diagnosis. Normally you just push through things and your body comes good but then all of a sudden pushing through doesn’t always work. I used to get impatient and annoyed with myself but have had to learn to be kinder to myself. I have had to learn that I sometimes have to take a different approach and that things are not always going to bounce back as quickly or as completely as they used to.

At this stage it is early days and you might not be feeling up to much but as Dani suggested go out for a really short walk, do some small tasks around the house that you feel physically able to cope with. Then build on this as you start to feel physically and mentally better. Don’t beat yourself up if you can’t do much for a while as this treatment is brutal and can take some time out of your life but you will get there. Radiation fatigue can be debilitating for a while so this is where you have to be kind to yourself but realise that it does get better and you can’t rush things.

 The worry you have about everything being cancer is only natural but you will be having regular checks from your medical team so put your faith in them. It takes time but the anxiety will recede. I am now 12 months since my last op and 3 years since radiotherapy. I initially felt very anxious too but eventually decided that I would leave it up to my team to look out for any recurrences and would put the worry to one side and get on with my life. I decided why worry until there is something to worry about. I found that distraction really helped so when I was well enough I got into gardening, joined an exercise group, started volunteering. When you are busy there is much less time to worry. Well that works for me anyway but everyone is different.

Sending you my very best wishes.

Lyn

How is your taste buds recovering lovely? 
well done for getting threw the treatment it is tough I’ve felt really defeated this week mentally and physically but I know this isn’t forever, cureable and treatable the words i have to keep remembering. I just get scared sometimes I’m so young and I feel I’ve so much more life to live and love to spread. I pray this is just a blip in my life and not the end of my story. X

You’re right it really knocked the stuffing out of me, it was the last thing i expected when i went to the hospital for my follow up on my adenoid surgery, but they moved fast and treatment started pretty quickly, I’m gonna have a chat with my oncologist tomorrow just to hopefully get abit more understanding of things and hopefully a little reassurance. 
i appreciate your advice and I’m gonna take some time to be more compassionate to myself and understand that i need to rest and slowly build myself back up

i will leave my faith in my team and learn to trust them it’s a scary time in my life and sometimes them scary thoughts take over. 

thank you for the lovely advice 

Connor xx

Hi Connor

Yes just look on it as an inconvenient blip in your life. I am sure you will be getting back to your life with a renewed enthusiasm after your recovery. Take your life in both hands and go for it and enjoy every moment. You have a second chance.

Lyn

Connor96 said:

i will leave my faith in my team and learn to trust them it’s a scary time in my life and sometimes them scary thoughts take over. 

The brush with death is a painful one. For most of us it comes out of the blue. There you are one day jogging along through life and the next day you're staring down a black hole. I've done 4 years but next week I'm at my yearly oncology review. I'm getting twitchy...It doesn't leave some of us but we learn to compartmentalise. I've always been a glass half empty girl. It's my nature but even miserable people get cured. The glass half full folk just have a straighter mental road and an easier ride when they can't walk it.