Nivolumab Immunotherapy

Hi Sn ow White.

Sorry to hear about your husband. There have been some extraordinary responses to immunotherapy so that's something to give hope. There are a few people on it here in the group. They might be able to help if they are around. 

If you put immunotherapy into the search at the top of the page, you'll find a few posts

Best wishes

Hi Snow White sorry to hear about your husband s pet ct scan results. There’s a link to a guys blog who is getting great results at moment on immunotherapy. It’s quite a technical blog. 
https://www.ansonmackay.com/blog

If you can pop an update on as and when  to help others who may follow in similar circumstances. 
hugs Hazel x

1. Hi Snow White, I had immunotherapy treatment with Nivolumab at Clatterbridge in Liverpool, I can only tell you that it appears to have worked for me. I had a stage 4 melanoma growing from my parotid gland and into my ear, surgery was successful at removing the tumour and my ear however because it was a tumour of unknown primary site there was a high chance it would pop up again somewhere else so they put me on a 12 month course of Nivolumab to kill any further existing cancer cells, it’s a clever drug it basically reprograms your natural immune system to identify the cancer cells and kill them, cancer has become very sneaky and has found away do disguise itself so that our anti bodies fail to recognise it, Nivolumab basically re programs your antibodies to recognise and attack the cancer. I understand it has different success rates depending on the type of cancer however those overall success rates have been very positive. Mine was administered by drip once a month, takes about an hour. Side effects are different for everyone but I must say mine hadn’t been as bad as I was expecting, thing is they are quickly onto the side effects and treat them right away, I developed quite bad fatigue and colitis but overall this got better over a period of time, it’s been a year since my treatment stopped and I’m pleased to say I remain cancer free.
2. I hope this helps to assure you that immunotherapy treatment is the way to go and at some point in the future it will be the go to treatment for all cancers. I wish you and your husband the best outcome with the treatment.

Thank you Dani. You’re right, there are some informative posts and it’s given me hope and restored my positivity when I was feeling hopeless after today. Thank you 

Thank you  Hazel. I will certainly read this tomorrow. My head is bombarded this evening, so no use reading now as I won’t take it all in. 
I will be sure to give updates when he starts immunotherapy as I have found this site so helpful on our journey, so I would be happy give some help to those following. 

Hi PaulMichael. Thank you so much for this. It has helped me get my positivity back this evening when I had felt in despair. My husbands tumour is close to/around his carotid artery and he has been told several times it is not operable. He gets a lot of pain, so my hope is that as well as giving an extension to his life, it will ease his pain. Obviously this remains to be seen, but I will advise the forum as and when we have some developments. Thank you for replying, it will help me sleep tonight.