Hi everyone my name is Mandy and I have been told this is a great place to be if you need to talk ❤︎

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Hi again so I have squamous cell carnicoma,mouth cancer that has spread to my neck,the surgery plan is...left neck dissection,did say tracheosfomy but I have been told that won't be necessary,dental clearance,tumour dissection including rim resection of mandible,left radial firearm free flap.. Sooo that's a lot eh! I've read the process etc will not be reading it again lol because I totally conviced myself that I was having the surgery to die! Yes I completely freaked out to a point where I even told myself I wasn't doing it,anyway right now in my head in having it lol it took a while to convince myself and a lot of reassuring that I would not die,I feel really stupid and kinda ungrateful at the same time to,I'm lucky I have the opportunity for surgery where many haven't my own mum included,as I feel stupid because as if they're gonna waste their time doing something that would work,I am babbling yes I am,I am a babbler a great talker of twaddle and a chatterbox,and I am absolutely petrified of what's happening to me right now..... 

          

            

  • Hi Mandy I have had quite a bit of what you have had  so dont panic you are not alone. Fire away with any questions  

  • That is really good to hear,lol sorry not that you've been through it not at all,just that you know exactly what's what xx

  • May I add you as a friend please? My surgery is this Tuesday coming and could do with a friend that's this close to it all of that makes sense lol

  • No problem lol yes welcome to the club no one wants to join. First thing is stay away from google is the general advice   to stay sane 

  • Mandy I have had a salvage neck dissection and had a flap from my leg and that was on the 28th of october . So I have totally healed now , But they said it can be 4 to 6 weeks to recover. I think yours is more involved so may take longer I dont know 

  • Yeah they've said 2-3 weeks recovery in hospital then also will have visits at home and speech therapy because part of my tongue will have to come out,I was just So scared that I was gonna die,getting emotional just saying it but I can see that is not the case lol,it's stupid Ive been more scared of the surgery than the cancer itself I feel like a right plonker!I actually have a panic disorder too which really doesn't help it makes everything like a 1000% more drastic in my mind and I have up smoking,cold turkey! It's been nearly 4 weeks now and that is driving me insane I think that also makes me cry cos I want a fag so bad,I apologize lol I do talk a lot lol

  • Hi sorry to message again lol I just wondered if you received a huge message from me after he last message? It's only because I'm new on here lol I managed to get a pic of myself on my profile but I think I lost all my big paragraph about my situation it's not showing up sorry to be a pain lol

  • Hi Mandy No worries whatsoever  I havnt received a huge message that I know of lol 

  • Ahh bugger lol everything is disappearing lol!

  • Hi Mandy, welcome to the site. You're right this is a great place to talk, and also have a good old rant and rave if you need to, we all know how you feel right now, Things will settle down once your treatment gets underway, then you will feel better about things. Just ask on here if you have any questions or worries, someone will always answer if they can. All the best.

    Regards Ray.