Good morning. Steve here.
I have my diagnosis, and now it's a four week wait until radiotherapy starts, with appointments for mask-making and so on.
I am off work for the duration and I have sufficient full pay sick pay to see out the treatment. I can keep busy. I am an avid reader, I like walking and so on. My worry, however, is that when treatment starts I will be more housebound, and my partner and I have a small house. She works from home and is a tower of strength in getting me to treatment. I can't help feeling I will become a burden in the weeks to come. She wants to get me to radiotherapy, but how do I give her space when I am ill?
Steve
I can't remember how many times I apologised to my husband for "ruining his life" So I know exactly how you feel. Acquired wisdom now lets me tell you to turn the tables around. What would your reaction be if she was ill?
RT isn't breeze, you will need her support but you can get away without having to be nursed too much. My husband did help but I managed to look after myself
Try not to worry
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hello,
Thank you for that good advice. I'm feeling more rational now.
Hi Steve. You will work it out. I moved into spare bedroom which was a blessing hibby could sleep without me disturbing him in the night as time went on I was up as much as I was asleep. Then j bay napped j. Daytime. I too am an avid reader but I lost my love of books I watched box sets instead. Thankfully reading came back. I couldn’t have driven myself it was a 90 mjn journey and spent most of it nodding off in car. As Dani says you would so the same if roles were reversed. Try not to overthink it baby steps snd one day at a time.
Hazel c
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thanks so much for this support.
Steve.
my husband was wonderful and took me to every single appointment. I found out i was claustrophobic when having ct scan and radiotherapy was hell i ended up on lorazepan and i would not have got through it without him being there.
i think you will find our partners feel powerless in these situations and helping us gets through helps them to cope.
Plus fatigue is real and is nothing like being slightly tired you will be lucky to stay awake and it definitely became worse as the weeks progressed.
let her look after you … you deserve it and you would do the same if the situation was reversed.
Is that your llama? So lovely. I have quite a few animals and found them very calming after I finished treatment all the best. Lizzie
Hello,
Not mine, I'm afraid. He lives up the road. But you're calmer with a llama.
Hi Steve
You will work it out. Lots of good advice has already been posted. Probably the most important thing to remember is that your partner will possibly suffer more than you do through your treatment.
Clearly you will have the effects of the treatment, but at least you will be in control (I use the term loosely!) of what is happening. She, however, is "just along for the ride" and has to see you suffer side effects and have the worry of what the cancer is doing to you and your future with her. Just ask my wife!
We all say be gentle on the people that care for us, but there are times when the treatment gets too much and you snap. Totally unintentionally. Maybe an early chat about what is to come would help both of you understand the other's needs and when you need support and when you need space.
Sometimes we need to let people help us - I am a most stubborn husband/patient - as that has a cathartic effect for them.
Glad to see you like walking as it is important to get as much exercise and fresh air as your body will allow. However, you may need to be accompanied just in case your body decides enough is enough when you are out of the house.
Hi Steve You are over thinking the situation. Walk whenever you feel like it rest whenever , Eat as much as you can now and put weight on if possible. You will just need the bed and sofa and toilet and a bucket. Time will fly by no one has invented a way of stopping that yet. You will be fine all the best
Thanks for that, Peter.
We had a talk last night and she has prepared herself for these things.
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