Melonoma to neck

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I HOPE THIS HELPS SOMEONE. In March I thought I had Shingles. I sent photo to Dr I along with a photo of what looked like a skin tag that had just appeared in the previous week on the side of my neck. I was given meds for shingles.The Dr wasn't concerned about the tag. Within a week the skin tag had grown. It looked like a small dark red grape.Within a month it had grown to the size of a large red grape and started oozing.The Dr referred me to Dermetology...There was a waiting list of 10mnths. I had a policy with Benenden and they covered the cost of a biopsy..it turned out to be malignant MELONOMA.. The experts have said this was as a result of SUN DAMAGE in my youth..So please everyone have a Check at all your spots etc just in case and cover your self and kids in FACTOR 50 twice a day when in Sun. 

My CAT and MRI SCANS came back clear so I'm on the list for Sentinnel  lymph node operation  in my neck. Has anyone gone through this..any advice is welcome ..don't hide anything please.

  • Hi Tootsie

    So sorry you've had to go through this

    We Head and Neck cancer patients who have had radiotherapy know too well the risks. We are advised to use sunblock on our irradiated skin for life.

    There is a dedicated melanoma group HERE. You might find it useful to post your message there too where you are much more likely to get a reply.

    Best wishes 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dani, thankyou for your reply. I have left a message on your https//...re your acid reflux..I had an operation to my oesophagus 35yrs ago and have been taking Lansoprazol 30mg ever since.with no discernable  side effects. I very seldom have any reflux. So, as they say, keep taking the tablets..However I still have problems swallowing, some days better than others, and always need water to swallow properly. I was interested in your blog that you used the IQoro..did you have any success. Thanks again for your help to strengthen my fortitude for my journey ahead..N

  • I’ll reply here as well. 
    I think the gizmo is worth trying. I still use it though I often forget. Bad! 
    I take organic aloe Vera juice in the morning. I’m beginning to think that has more effect as when I ran out for a week I started to get indigestion again. 

    At first I put any improvement down to a drastic diet change avoiding all the so called triggers but I am back to my slovenly dietary vices yet I remain symptom free. 
    I’m off PPI entirely now. 
    So my recipe is iQoro for a few months. Change diet to let inflamed mucous membranes to settle. Aloe vera. Probiotic capsules with breakfast then reduce and finally eliminate PPI. 
    Whike I was reducing the lansoprozole I relied on Gaviscon advance 

    Hope that helps. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Sorry I’ve wittered on about reflux

    PS. NICE have authorised the gizmo to help stroke patients swallow so it is worth trying. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks Dani, I never thought about giving up on PPI..I suppose it has its long term side effects to. At present my Kidneys and liver are OK. I like the idea of strengthening swallow muscles . Ta again N.