Voicebox Tumour - spread to neck lympth nodes

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Hi All,

I was diagnosed in mid June with a tumour on the top of my voicebox. This was removed via laser robotics & the surgeon managed to get 95% of it. But it had spead to the nodes in the right & left of my neck.

Since then I have been put on treatment of 35 Radiotherapies & 3 chemo with Cisplatin. I had my 20th Radio today & my second chemo last Tuesday.

I seem to be tolerarting the Radio okay so far & am still eating. Although everything tastes salty. Luckily the pain has not been too bad either & I have managed it with Cocodamel.

My first chemo was okay & side effects went after 2 days or so. But this weeks chemo effects have been awful. Not sickness, but constantly feeling dizzy & just totally spaced out. I spent 2 days in bed hardly managing to lift my head off the pillow, as the room just spins & I can't even walk in a straight line.

Has anyone else experienced this? If so, any tips to help? I am now starting to dread my 3rd chemo already & its not until 4th Oct.

  • Hi Yve. I didn't feel the way you did but can I ask if your team is aware of how you reacted? They may take the decision to abandon your last one.

    Lots of people fail their last chemo for one reason or another. It doesn't make much difference as it's the RT that is curative.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Dani,

    Thanks for the reply. I had consultants appointment today & let him know about the issues. He thought it might have been something to do with my electrolytes? So had bloods done again today & hopefully it will come back with something. I think if he intends going ahead with the 3rd round of chemo I will have a chat with him again.

    Thank you for the advice...its nice to know that there is support out there & that we have all been through this in various ways

    Yve

  • Hi Yve. I also had 35 radiotherapy sessions but onky completed 2 out of planned 3 chemotherapy and. In conjunction with my oncologist I didn’t do the 3 rd i was starting to get slight tinnitus so we jointly took decision not to take it. My tumour was HPV derived. I didn’t have any of your symptoms I was relatively lucky with chemo. 
    best wishes Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/