Hi all, so glad I found this forum and I hope it helps me and hopefully I help others.
I've had a horrible battle with Throat Cancer for 3 years now, 36 Radiotherapy, 2out of 3 chemo( was too I'll for the 3rd), it came back after 8 months so I had 12 and a half hours surgery to remove a tumour and part of my tongue. I'm in Remission now and so so grateful.
I'm left with silent aspiration, I can't swallow safely as food can go in my lung, I've had Pneumonia 6 times in 18 months by trying to eat 
. I struggling around this but I have exercises to do and a slim chance of eating pureed food one day. I hope n pray!
Anyone with a similar issue? Any support would be much much appreciated, I live alone. Thanks so much x
Hi Lonewolf.
Welcome to the community but so sorry to find you here with such awful side effects. I can't speak for myself as I've made a fairly uneventful recovery but there are members here who are tube fed permanently and cope very well so don't despair if you find that there is no improvement. Risking pneumonia every time you eat seems pretty awful to me.
One of our other Champs chris2012 has a permanent PEG. I'm sure he'll be along later with some wise words.
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Good evening Lonewolf, sorry you are going through it all again, i know the feeling very well as i had it 3 times within three years, thankfully they stopped and cured it on the last operation back in 2010. I cannot speak as my voice box was removed in the last operation also im PEG dependent on food intake but can swallow thin liquids so its not all bad. My problem is not because of food going down my lung it's just my swallowing is not good enough plus my tongue was also operated on in my first operation which as you know affects swallowing a lot. I did try all the exercises etc but unfortunately, they did not work so i have now settled to PEG feeding which is now part of my new life. Hopefully, the exercises work for you and you will be able to swallow pureed food as its better than PEG feeding and tastier 
. Please feel free to click on my name and it will take you to my profile where i have written about my dealings with head and neck cancer. Wishing you all the best and hope things improve for you, take care.
Chris
Its sometimes not easy but its worth it !
