New to the group

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Hi

I've just recently been diagnosed with a cancer at the base of my tongue and I'm terrified and keep getting waves of incredible sadness that is making me bawl. I want to be strong and am a strong person but I feel like I've been floored by this. I'm sorry as I know a lot of people are going thorugh much worse but I want to stop feelig like this and just hope I can be strnger for my family. 

  • Hi, i have just read your message and i am waiting to find out if i have possible lymphoma, or pancreatic cancer, and i too am a strong person, but i am absolutly devastated!! And alsokeep bawling, but i think this must be normal, but already i have found this site really helpful, so much info on here, also i rang the specialist nurses and spoke to Mike he was fab, knew what to say really helpful, i really think it would help u too, i am coping better since our chat, keep in touch with me anytime regards Donna

  • Thanks Donna, 

    I've never reached out in this way in my life and feel a bit daft, I've always been the one people come to for help but (not) glad to hear you are the same and I'm not alone. I will call my nurse and have a chat as you said. Good luck on your journey-here's to hope!

  • Hi Ed’s welcome to the club none of us wanted to join. The waiting’s the worst it lots of us in here . I’m almost 4 years post radiotherapy for tonsil cancer with several affected lymph nodes happily living my life. My blog below might help we are all different but our cancers are eminently curable 

    shout out any questions 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you Hazel, I will have a look :-)

  • Hello and welcome - I too am just early into diagnosis and have just completed MRI/CT/Bloods etc and will get more information about my tongue cancer next week. It's a bit surreal/depressing/weird and it is ok to feel crap despite what you might think about the relative seriousness, it's you it is happening to. 

  • Thanks GeneS

    i just needed to tell someone/anyone as can’t stop getting upset and I’ve not had any results or procedures I just keep bloody fearing the worst. Thanks for replying. It’s just the most surreal thing to be going through. 

  • I know exactly how you feel Eds. It’s normal but nonetheless terrifying!  Once things are set in motion and you have a proper diagnosis and treatment plan it does get easier I promise. All those what-ifs that are hurtling around in your head can drive you mad so don’t hold back on seeking medical help for your mind if you find it all overwhelming. I did, and I know many others in here who did too, and it helped enormously. Wishing you all the best. 

  • No worries, the other issue I find is that any old strain or pain is now "...is that cancer?..."  :-)

  • Thanks MarkEL

    appreciate it. Where did you get the help from, sorry sound like a right idiot?

  • Ah had a headache and stiff neck the last three days and I’m thinking it’s bloody spread. 
    thanks Gene.