Right Tonsil and Lymnode cancer

Hi Alfredo, well done on completing your treatment, the way food feels and tastes at the moment is usual after treatment The best way to treat food at the moment is as fuel, which you need for your recovery, the texture and taste will improve with time, until then eat as much as you can manage, adding cream and butter where you can. All the best.

Regards Ray.

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Hi  Alfredo Yes it’s not unusual as Ray says treat food is fuel and you won’t go far wrong. I’m almost 4 years post radiotherapy and only spicy foods are beyond me now

For first 6 months  I got very little pleasure from food but it has come back. . 
well done on completing treatment and welcome to our forum 

Hazel 

Thank you Ray

Your advice is encouraging and I will try to be a little more patient!

Best wishes

Alfredo 

Hello Hazel

Thank you for getting back to me

I am interested to hear of your experience with the same symptoms 

Will read your blog in due course

Best wishes 

Alfredo 

Hi Alfredo 

I am in the same boat and i'm hardly eating at all.  I have no appetite and eating is a chore.  I got the PEG fitted however it had ti be removed exactly the time I was finishing treatment 5/11/21.  I've lost nearly 5 stone 

Alfredo said:

Does anyone have a similar experience and do things ever get back to normal?

Yes, most of us and yes, almost 

welcome to the community
8 weeks is early in your recovery and the fact that you can actually chew and swallow food is encouraging. 
For the moment it will all be strange. Something you can taste today you might find unpleasant the next. If you can swallow it do it. Taste comes back gradually for the majority of us and even at three years plus I’m getting improvements still. 
Many of us turn a real corner at 12 weeks and then afterwards it’s simply a question of plodding on and working out which foods are ok. 
I love avocado but it was a year before they tasted good enough to eat. Now I can eat a mildly spicy curry even. 
I had no appetite for months and for a good 18 I managed to eat anything and everything and not put weight on. It was a bit of a shock when I started to get fat! 
Keep trying and don’t be disappointed if it doesn’t work. Tomorrow is another day 

Hi Weejay. Why did your PEG have to come out early?

Hi,

Yes me! I’m now 13 weeks post treatment and things are really improving. I can now taste certain foods and textures feel more normal. Not long after treatment finished, I had creamed rice from a can and the rice felt hard and chewy. All the vegetables seemed uncooked in soup and I couldn’t work out if the lumps of ready brek were food or my mouth. Now it’s fine. Swallowing isn’t as easy as it could be but I’ve noticed major improvements of late. I went out with my husband for our anniversary last night and I was able to eat a meal (almost) which was mash, sea bass, broccoli albeit all coated in a watercress sauce for the first time followed by crumble and custard. I’ve lost 3.5 stone through treatment as I didn’t have a tube and at one point could hardly get a shake down. It will get better for you too. 
Clare. 

Hi Clare. Well done always great to hear about improvements. Keep it up 

Hazel x

HI Dani,

I was experiencing pain with the PEG and turned out it had moved out of my stomach.  I hadn't actually started using any feed I was just flushing with water as was eating normally through treatment.  It was really disappointing having it removed just at the point I was needing it and I think my recovery has been greatly affected by lack of nutrition