Hello

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Hi everyone 

I’ve joined this group as was diagnosed with a stage 4 SCC tumour in my nose at the beginning of may - completed a combined course of chemo and radiotherapy which ended on 8th July.

so far recovering well and managing the side effects - eyes are very watery and puffy and I have severe nasal congestion - all to be expected. 

Just wanted to reach out to others that may be having the same experiences 

thank you 

  • Hi welcome  ti our small friendly community group. Well done on completing treatment. 
    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi I've also have a tumour at the back of my nose. I'm starting chemotherapy in 2 weeks 3 sessions over 9 weeks and then radiotherapy. I'm terrified of the unknown if my body can take it. I'm so pleased for you that your on the road to recovery. Have you got any tips that will help me get through this?

  • Hi, 

    I’d say trust your oncologist and treatment plan and tell them if you have any side effects no matter how minor - I was so lucky to have a great team of nurses etc who I could contact whenever and they saw me weekly to go through everything 

    my radiotherapy was daily for 6 weeks with weekly chemo on top so a fairly intense course of treatment, but the tumour has started to protrude through my skin (hence my triceratops name Grinning) so they had to do something radical 
    to be honest I found the chemo the easy part. 
    look after your skin beforehand and start using non fragranced cream such as cetraben to wash with and moisturise. 
    have they told you that you will have a mask fitting for the radiotherapy? 

    easy to say but try and stay positive and do what they recommend to give yourself the best chance

    Hope this helps

    all the best x 

  • Good advice  from Triceratops. I'll add......Your radiographers will be your first point of contact daily so do tell them how you are. They can get things moving with the rest of your team. Take your pain killers by the clock. Pain is better managed before it hits rather than after. You'll probably end up on opiates which slow the gut down so you should get laxatives with them. take them. I took two Laxido daily and avoided constipation entirely.

    Your body, , will take it, believe me. It's hard but doable.

    Hang around here...lots of help and advice  and good luck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • PS I have a friend who is two years out of something similar and she has married moved house and is living really well with her family. She was on Fluorouracil for her neoadjuvant treatment which meant she felt pretty ghastly and lost her hair but she bounced back....so don't despair

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you so much for good advice. I'm getting my body prepared I know I have to check if I can take vitamins but I'm eating healthy. Xx

  • Haven't mentioned mask fitting as yet. Just taking each day as it comes. I will get my strength from all you amazing people. Thank you. Xx

  • Thats amazing news about your friend. It gives me hope that I will come out tge other end. Xx

  • Thats amazing news about your friend. It gives me hope that I will come out tge other end. Xx

    This cancer is really SH India Tango but we do get there. Rant and rail here. Somebody will always be here to listen. 
    Im sure vitamins are ok but not mega doses of antioxidants. Just keep you nutrition and protein up to heal. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi spice  girl welcome from me as well. I too know the lady Dani is talking about   I’ll add that this week  her and her hubby started ballroom dancing. She’s doing really well she was around 40 when diagnosed. Ask any questions if one of us can help we will. Your body will cope it’s surprising how resilient we can be. I was 61 when diagnosed with tonsil cancer. Yesterday I drove with hubby from Santandar to Southern  Spain I’m 4 years post treatment. During treatment I never thought I would be fit again. But here I am happily living my life. 
    Hazel  

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/