Hello
I saw consultant yesterday ( week 8 post treatment)
He’s happy for me to move to supplementary shakes & arrange PEG removal. I see dietician next week so will push for this as I hate the PEG.
Has anyone else moved to Scandishakes? Do they help maintain your weight ok?
Does PEG removal hurt?!
Thanks
Backing up Ray's comment, I've had three removed without any pain; they might need to tug it a bit if you have any crystallisation on the inside, which can happen, but it's fine.
I've never been on Scandishakes but I've been on all sorts of similar products, I lived on Complans for a few months in 2014, and they do certainly help you keep weight on. All will be well!
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Hi Blod
It’s great that you are now able to move onto supplementary shakes now, that’s real progress.
Your dietician will be able to answer all your questions about drink supplements and how many to drink.
I have not tried Skandishakes but my dietician put me onto Fresubin 2 kal with fibre. I have to drink 2 bottles a day to top up what I am able to eat as my diet is a bit limited since my maxillectomies. The Fresubin works really well as it is high in calories and I have been able to maintain my weight with no worries.
Initially when I had my nasogastric tube in I had to take in 5 bottles of Fresubin (200ml a bottle) a day to maintain my weight as I could not eat anything at that stage. My dietician worked out the quantity for me before I left hospital working on how much energy I needed to maintain my weight.
Best wishes with your ongoing recovery.
Lyn
Sophie66
Hi there, im a newbe on here. i was wondering when you had a rig fitted was it a painful prodcure.
I had a rig fitted last July and i have not had a very nice experience, and in June a few weeks ago i had a RIJ fitted, again not a pleasent experience, so i would love if i can get some feed back if anyone can tell me. best wishes to all.
Hi Ole gal and welcome to the community. If you have time perhaps you can fill us in with what's happened. The best place is to add it to your profile. Then people can refer to that to make sure their reply is relevant ......but only if you feel up to it
I didn't personally have either a RIG or a PEG but there are plenty of folk here who did and by and large there was some discomfort at first but things settled by two weeks
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007