First welsh patient enrolled in TORPEdO

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This is great news for patients in Wales 

healthandcareresearchwales.org/.../first-welsh-patient-ground-breaking-treatment-throat-cancer

I wonder if they are here on the forum 

  • Hi Lisa we are friends so I’ve sent form to you for v a t exemption 

    Me too please. 
    Never got round to it after Stephanie went to all that efffort getting it organised 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Oh we're the same .... It's a bummer isn't it! The branston pickle keeps shouting at me but the tiniest bit is absolutely a no no. I can only do bread if absolutely saturated in butter or spread cheese but still need soup or Oxo to dip it in. Yep yoghurt isn't great either but Greek is better. Asda do pre done salads and I've managed to have the prawn and cheese ones and they have a mayo but it is sooo subtle might be worth trying ..the tuna ones a nightmare though..the texture is horrendous in my mouth.

    I still need fortisip to keep my weight up but I am a size 6 now ... But it's impossible to keep a good weight if reply on food alone I find XXX 

  • Hi Lisa. My weight started coming back on from around 15 months. Thanks for Asda tio I will try it. Have you tried cheese on Toast I can  do cooked cheese but raw is one if my triggers. Toasties I can skid manage admittedly in early days  always had to dip. Now if sandwich is moist I can manage it. I still have endures in I order a pack of 24 every 6 months now it’s for those just in case days. Have you tried auricular acupuncture I found it kick started my remaining saliva glands into production . It’s strange how we all react. Portage is my go to breakfast with a sliced banana and honey. 
    Tuna I have to agree not my favourite but i can do fresh salmon quite easily. Lamb is my favourite slow cooked. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/