Cancerous tumour on floor of my mouth

  • 50 replies
  • 155 subscribers
  • 3142 views

6 weeks ago I went for a routine check up at the dentist. After a whirlwind of tests I am told I have a tumour on the floor of my mouth adjacent to the saliva gland. It is going to be excised, and possibly some lymph nodes too.

 I am reeling! what should I expect to happen?

will I have speech problems?

how long will I be in hospital?

is it a long recovery?

is the post op painful?

any insight would be appreciated thanks.

  • Hello! Could you please tell me where was your treatment? Thank you

  • Royal Sussex  county Brighton

  • How are you  three years later?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I’m OK. I’ll do a more detailed reply later.

  • Thank you. I hope you didn't mind me asking 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • No problem about you asking.

    How am I?

     I consider myself very fortunate. For that I have to thank the skill and dedication of the surgeons and nurses in the Maxillofacial unit RSC hospital in Brighton. I will be forever grateful to them.

    As we all know it’s a tough gig, but the important message is you recover.

    My operation was eleven hours, surgery was around nine hours. 
    Removed floor of the mouth, part of the tongue, most of the back teeth and the lymph nodes in the neck. Free flap replacement from the wrist with the feed artery attached to supply the blood once in place. And a tracheostomy. A few days of intensive care, and a few days on the ward.

    Speech and swallowing therapy and 3 months of milk and protein powder.

    But I can’t say I had any pain. My op was end May 2022 and I did a four mile jog by seventh July.

    my speech isn’t perfect but it’s ok.

    I will never eat a steak or crisps again and have to have a lot of sauce with my meals.

    A minor irritation is the nerves in neck and jaw which haven’t recovered. Shaving is unpleasant ( I couldn’t bear an electric razor)

    So, long answer to a short question. But we don’t even talk about my health at home anymore. I’m fine.

    I would hope that this reply will help other people who get a shock diagnosis as I did and search for help.

    Garryj

  • Thank you so much. You don’t realise how much encouragement that gives to people just starting. I hope you continue to be well. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • I want to help Dani. When you get a mouth cancer diagnosis. It rocks your world, nothing in anyone’s previous life prepares them for a cancer diagnosis.
    I won’t minimise the challenges ahead, but I just want people to know that you will recover.

  • Thank you for this reply, Garryj. As Dani said, it's always lovely to hear about people's recovery and how they are coping. I had the same operation as you in 2008, and like you, I have made a good recovery. Although I had two further operations in 2009 and 2010, as it returned, life is good now. Your name rings a bell, and it's great you made a good recovery. All the best.

                                                                          Chris 

    Its sometimes not easy but its worth it ! 

    Community Champion Badge

  • Had all my treatment at  Norfolk and Norwich