Cancerous tumour on floor of my mouth

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6 weeks ago I went for a routine check up at the dentist. After a whirlwind of tests I am told I have a tumour on the floor of my mouth adjacent to the saliva gland. It is going to be excised, and possibly some lymph nodes too.

 I am reeling! what should I expect to happen?

will I have speech problems?

how long will I be in hospital?

is it a long recovery?

is the post op painful?

any insight would be appreciated thanks.

  • Good luck Gary. I'm sure your team will look after you. Don't forget your laptop/tablet. Long charging lead for that and phone.Headphones and plenty of data.....Get back to us when you can ....

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Gary. Best advise trust in your team they know what they are doing. Try ti keep off Dr Google stick with us on here. Hopefully you’ll be able to update us from hospital when are you going in do you know ? Treatment plan sounds about right for your tyoe of cancer.Am sure   will pop on later with reassurance. 
    Hugs Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Thank you Dani, I have been told not to bring in valuable tech like an iPad/iPhone as it may disappear. So I will be off the radar until my wife brings in my proper phone with a sim, which won’t be until I’m out of intensive care. Maybe 2 days, 3days? I don’t know. In the meantime I hope for the best.

  • Yes sounds best but once you're out of intensive care you'll be back online. All the best.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Good evening Garrryj, i took my laptop, phone and crossword magazines plus some books from the library in but did not really start using them until i was out of intensive care and step down. They locked them away until i wanted them, on the whole, most people are honest but they always advise not to take in valuables but i think it can get very boring without them. Im a bit like you and not very tech-savvy Slight smile. I know it all sounds a bit scary at the moment but it will all come together with the skill of your consultant and the team who have a lot of experience in these sorts of operations.I used to repair ships and my logic was that they would put their trust in me to repair their boat due to my experience so i fully trusted them in getting me all sorted out, wishing you all the best.

                                                                    Chris 

    Its sometimes not easy but its worth it ! 

    Community Champion Badge

  • It’s done. 24th May. 10 hours of surgery. They took out the floor of my mouth, took a chunk from my wrist and that is now the floor of my mouth. Took out some teeth (not sure how many) took a skin graft from tummy to cover the wrist wound. Sliced ear to ear and the skin pulled down to allow them to remove all the lymph nodes. Tracheotomy of course. Still not healed over which is making speech difficult.

    I’m still  on liquids 17 days after surgery.

    how do I feel?

    Spaced out? Sluggish brain function. Struggling to maintain any optimism about where I’ll be in 2 months 5 months. I understand that major surgery can leave you with good days and bad days, but understanding and coping with it are not the same thing.

     I know I said  before the op that this has rocked my world, but I didn’t realise how much it would be.

    something I haven’t seen in the posts is I seem to be short of breath, even lying down to sleep? Anyone experienced this?

     I am aware the my post isn’t as articulate as it would have been before the op but I’m doing my best.

    I this about where I should be after 17 days?

  • Hi Gary

    Thanks for the update  

    So glad you’re through the surgery 

    17 days? Heavens I’m amazed you’re managing to write anything. 
    It’s really early,  not only your body but your mind has to recover from the trashing

    I can’t help with the breathlessness,  It sounds surgery related but best ask your team. 
    You will get there in baby steps a day at a time. Don’t expect too much of yourself but try to push it along a little. 
    Are you having radiotherapy as well? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thanks Dani, I know I’m too impatient but at 75 years old I’m not going to change. They have sent all the bits they removed for analysis. I’ve been called in for the MDT meeting on Wednesday. I have a terrible feeling that I am going to be told that for safety they will do radiotherapy.  I’m not sure I can take it. This has not been a good day.

  • Fingers crossed you don’t need it.

    it’s not easy but you’re a fit bloke with a decent positive attitude and that goes a long way to getting you there. 
    There are lots of people here to help you through too. 
    There are a few horror stories in these pages but by and large most of us get through this relatively unscathed and make a good recovery. 
    I was 68 when I finished Tx
    Remember it’s only around three months out if your life till you’re in the sunshine again. 
    Fingers crossed 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Garry. Fingers x you don’t need it but if you do like Del Boy says to Rodney “this time next year “. It will be a blip in your life .Radiotherapy isn’t easy but I’m a wimp I was 61 if I can do it anyone can. Don’t read too much into anything at this stage concentrate on this part snd getting better the rest will follow. We’re all here to help 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/