Nasopharyngeal cancer

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Hi two years down the rd and seem to be some long term effects which was not mentioned this could happen and yes it’s normal and yep I no we are all different in how the treatment effects us and we are here to tell the story because it’s not easy and when things happen our reaction is omg has it come back already seeing what your hubby has gone through feel like your left on your own have to fight for someone to listen to you and offer help and advice work been amazing for me and my hubby support wise but the late effects starting to challenge us yet again I hope this makes sense eating problems chocking chewing 

fatigue tongue swelling slight numbness on the chin just a few anyone having or had any off the problems we are back at the hospital under investigation again but took a long time to get here any heBeetle would be brill thanks Beetle

  • Hi Deebo. So sorry you're having to fight these long term effects. Some of us seem to sail through yet others have ongoing problems for ever, it seems

    What investigations are you having?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

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  • Hi Debbo Sorry hubby is having on going  issues as Dani says we are all effected to differing degrees. I have got off lightly,my radiation fatigue. Did seem to linger i was just past 3 years last September when I had my light bulb moment.I no longer needed my 20 min power naps. We don’t realise at ge time how many side effects could effect us . Swallow I’m pretty ok but spicy will be a no no for me.I have slight fibrosis at back of neck radio side but otherwise I’m lucky and living life ok. I have developed a small mucus cyst on vocal cord which is being monitored it doesn’t effect me at all.I do hope  you and hubby can get his issues resolved. 
    Hazel  x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

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