Eating

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Hi i have hpv started treatment now i cant tast and dont want to eat

  • It can be very difficult indeed, has having a feeding tube fitted been discussed?

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Yes i have a tube but i can still swallow

    But i have no tase buds

  • Have you been given any high calorie drinks, Fortisips or Fresubin for example? I lived on them (and Complans) for quite a length of time, both drinking them and putting the through the tube; it's very difficult I know but you really need to keep your calorie intake up, food is fuel.

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Yes i have fortsips how many can take to live on please can you help me

    Radio and chemo has stoped my syliver so food is dry 

  • Probably the amount you need varies a little according to how big you are but I was on six a day (Fresubin rather than Fortisips) for about six months and that kept my weight stable, best to speak to your dietician though for more specific advice.

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    Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.

    http://mike-o.blogspot.co.uk/

  • Yes i have fortsips how many can take to live on please can you help me

    Radio and chemo has stoped my syliver so food is dry 

    Hi. A rule of thumb is to aim for 3000 Calories. More if you are big. I was advised 2.5 and I’m 5.3 and 55kg. 
    Have a look how many there are in each bottle 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Sorry  you’ve found yourself on here,but welcome to our club. Lack of saliva is a very common side effect which can be with you for a good while. As for taste it’s a case of eating to live not live to eat for a while as well.I got to weeks3 then had n g tube fitted and relied in that for 6 weeks, it was my lifesaver. I too had ensure high calorie food supplements and was told 2500 calories a day by any means. The ensures i had  were ensure compact which were 300 calories a time. When I was able to swallow I had 6 a day then tried soft foods eg eggs poached, custard etc to ensue I got enough calories. Last 3 weeks I was purely tube fed with sipping water. It’s nit an easy way the treatments is pretty brutal but the change of cure is high.hope this helps. My blog below gives an idea of what I had. 
    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • I dont know if i can do this 

    Its so hard 

    I put food in my mouth but its so dry i cant swallow it

  • Try using lukewarm tea to help swallow. You can do this I was 61 and I did it. If you’ve a peg fitted maybe it’s time to start using it  It’s there for a reason my n g tube was a lifesaver. You need the calories to sustain you through treatment and you need at least 2-3 litres of liquid each and every day. It really is a case of head down and get on with it. If you can’t do lukewarm sip water that can also taste revolting but it’s needs must. You may get metallic taste that’s normal. You can do it. Just forget about any pleasure from food, sad as that may sound it’s unfortunately true. You should have been told this before treatment started what the eating issues would be. My best advise is use the peg. How far into treatment are your? And have you started with painkillers ? Co codomol and oramorph are the usual ones. If you have started with oramorph it can help with swallow by numbing the throat  30 minutes before . as for taste like I said there’s nothing that can be done , try to avoid your favourite foods then the disappointment isn’t a big. 
    Yiu can do it 

    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Try soft foods like tinned peaches, poached eggs, tinned rice pudding and tinned macaroni cheese are fairly easy. The trick is to take a small mouthful of food and a tiny sip of warm water or tea to act as saliva. Then you can chase it down with more tea. 
    When did you finish your RT? 
    Most people find it difficult to eat till about six weeks after and 12 weeks seems to be a common turning point. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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