Before I start I want say a big thank you to everyone, reading your advice and stories during my husbands treatment for nasopharyngeal cancer has really helped. My husband has just finished six weeks of radiotherapy with 2 chemo. This is his second week after treatment has finished.
He has been in hospital for last 4 weeks due to problems with feeding. He started with an ng tube and now has a rig. On Monday he was sent home but had to go back because of constant vomiting. He came home again on Christmas Eve and seemed fine however he has been vomiting again, and complaining he can taste the feed. He also cannot tolerate any pain relief other than paracetamol through the rig without tasting it and being sick . This means he is in too much pain to swallow anything.
I am feeling so scared about looking after him properly at home. I phoned macmillan helpline at the Marsden and they said he should be seen but they have no beds and he won't go to our local a & e which is awful.
I would be so grateful if anyone has any advice regarding why he may be vomiting when he is home.
Hi Robin Have you tried putting other pain relief through the rig I had n g tube and used to syringe oramorph and crushed up co codomol mixed with water into a fine powder. I had to feed little and often as over time my tummy had shrunk and I couldn’t take a full feed. Some used to feed up to 4-5 times a day little and often. Can he swallow anythjng if you have the ensure or fortisip drinks they can be diluted with water.Hone this may help .Are you checking the p h levels in his stomach ?Sorry you’ve had to resort to asking in here fully understand your reluctance to go to A and e
hugs hopefully someone else may pop in I never had the peg just the n g tube
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thank you for reply. He is being fed by pump which is on for 20 hours a day at a rate of 75 ml but it still seems to be too much for him. He thinks all the pain relief is making him feel sick so will only take paracetamol. Its the taste of everything.
Hi Robin can you try him with a bit less time if he’s vomiting his body might not be digesting it. Paracetamol probably istn strong enough either. Can you syringe into peg ? Oramorph to give him some pain relief ? I could onky manage about 1000 mil those first few weeks after recovery. It’s hard ands sadly we don’t always get told how difficult it all is..are yiu getting and water into him orally as he does need hydration. I found Luke warm water a bit easier to swallow.. aLso diet Coke let it go flat helped me same with dry ginger again let it go flat that helps with sickness.
hope you get a solution.
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi Robin,
I hope things have settled down a bit but I carried on getting nausea and vomiting for about 2 to 3 weeks after finishing radiotherapy. I was told that’s not uncommon after radiotherapy so I took the antiemetics I’d had for chemo and that helped.
I could often taste the feed too which made me feel sick( I started to hate the vanilla very quickly really sickly, chocolate and lemon much better) I didn’t get on with the pump at all and switched to bolus which I felt I had more control with, I’d try and get hold of the dietitian and have see what they say. Meantime plenty of water and I’d use oramorph, it’s not that strong but quick acting. Its was rotten timing to have this over Christmas but the team you know should be back in now to give you some support.
Also I was on zoton fast tabs via the PEG and still use them a year on.
Hope things improve
Hi Beesuit
Husband ended up in a&e on boxing day there were no beds at the Marsden. This ended up being the best thing because they x rayed his stomach and discovered he was horrendously constipated. Not sure why the Marsden didn't think of that. They are treating the constipation and dietician is slowly going to reintroduce feed from today. Hopefully this will solve the problem.
Can I ask what are zoton tablets?
Lansoprazole, which I also take (for acid reflux); Zoton is just different branding as far as I can tell.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Sorry to hear you ended up in A&E. Hope he is feeling better. Constipation is no joke , the dietitian is always checking “are you bowels ok” and I would say fine and then had a horrendous abdo pain vomiting episode and realised I wasn’t fine. I have fresubin fibre feed now. I can’t manage a lot of vegetables compared to my pre cancer vegetarian diet, I still need a Laxido a( a powder you mix with water and can take via the PEG or drink) a couple of times a week.
I have zoton for acid reflux, as soon as I flush the Peg I feel I can taste the water then the feed, I assume it’s the position of the PEG and zoton seems to calm things down.
if the pain is from the constipation I’m sure it will settle soon but have plenty of fluid to keep things moving
Hi pleased he got sorted like you say am surprised the Marsden didn’t give you movicol or laxido when the treatment started you can continue at home by giving him 1 or 2 sachets via the syringe into his ng tube. At my cancer centre it was one if the first things I was given. Hope all ok now
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
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