Hi everyone this is my story so far, 2 months ago I started snoring and a feeling of something dangling in the back of my throat, sometimes I’d sort of choke on my saliva like going down wrong hole, so mainly cos of the snoring which seems to have come on all of a sudden I took a trip to my GP who referred me to ENT at my local hospital where they examined the back of my throat with the camera up the nose and found a lump in my Larynx and also one of my vocal cords wasn’t working and it was that which was causing the snoring
since then I’ve had a CT and MRI plus biopsy on the lump found in my larynx, tomorrow I have a ultrasound and aspiration biopsy on my lymph nodes in neck, and Tuesday I have another appointment at ENT and hoping for results of biopsy on the lump they found
so as you can imagine I’m going through thoughts of pending doom and I think I’m going to die I know you shouldn’t consult Dr Google and have got a severe rollicking from the Mrs etc , thing is when you read up about this sort of thing most say that it’s smoking and heavy alcohol use that puts you at a higher risk and I do neither, also the permanent sore throat hoarseness and cough etc I’ve had none of that only the snoring and choking sometimes
ive got a thousand and one things going through my head at the moment and I’m absolutely petrified, thinking has it spread have I had it for ages and not even known hence no symptoms, I’d appreciate any responses and I will keep you updated of all the test results
Hi Hazel, I am managing yogurts with fruits and the ensure and plenty of water even put some through the peg at this early stage no harm in that I will have to up the painkillers soon as it’s starting to get really sore now plus I can just manage a whisper as my voice has almost gone, I will ask for some more laxative tomorrow and start to take one a day to keep things moving, the fatigue is hard at times, got a really good team though and always chasing me up, not enjoying the chemo one bit sitting there for 4 hours I would of been happy without it but I spose it’s the belt and braces with the main treatment
kenny
Hi it is any consolation mine was 10 hours at a time. My cancer centre did every 3 weeks hence the 10 hour day including radiotherapy I w as dur gir 4 but only did 2. I took I pad kindle crosswords snd my own flask of tea
yes do ask for the movicol or laxido.
keep doing what you’re doing.
keep in touch Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi kenny, all sounds very familiar- losing the voice was quite frustrating but remembering to keep everything moist will help in the long run. Sorry to say the fatigue doesn’t ease off for a while yet but it is part of the journey. Focus on the end of treatment as every day is a day nearer. If you follow a similar path to me expect the after effects of the treatment to persist after Rt and Chemo finish. Chemo effects will fade first but th RT continues to attack the cancer for weeks afterwards. I only point this out as initially I thought the end of RT marked the end of the process and I wasn’t aware that it continues to work for a while afterwards. The benefits of the process are worth it and now nearly 2 years on from my initial diagnosis life is getting back to a semblance of normality. Don’t forget You are doing really well and are working toward a cure. Sending positive wishes Martyn.
SCC Base Of Tongue diagnosed March 2020 T3N1 or 2 P16+
30 Sessions RT 65/54 5 Chemo Cispaltin Apr/May 2020
Martles61
Thanks Martyn really appreciate that and I’m so pleased your doing well and long may it continue, one of the things that’s playing on my mind is the dry mouth situation and eating after etc I know it’ll take time but I love my grub like we all do I just keep thinking My saliva won’t come back and I’ll be confined to soup and ensure which I’m sick of already
kenny
My saliva won’t come back and I’ll be confined to soup and ensure which I’m sick of already
Kenny That won’t happen. Saliva comes back slowly. Radiotherapy destroys some salivary glands permanently but I found chewing gum stimulated what salivary function I did have left and most people have enough to be able to enjoy food again. Take a look at my blog linked below this post. There are two entries mentioning acupuncture which helped me tremendously
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Kenny Forget that your saliva won’t come back it will, it won’t be straight away. Now I can eat most things apart from chillis or some curries. Ok you may have to drink water or warm tea to help it down once you start to eat. If I say by week 5/6 of recovery I could do a small pork pie warmed up,poached eggs in toast crumpets .Your find your leval and work from that. I still use sugar free gum so encourage the saliva and at night /2 and xyimelts at night.I had auricular acupuncture and it kick started my saliva.
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
It's a bit of a stretch to look this far ahead from where you are, I'm nearly seven years post RT, but my saliva now is now every bit as it was before I started; had a big bowl of sweet and sour prawn stir fry earlier and it was great.
Eating for me is still a fairly slow process and meals tend to be a little cool by the end but that's down to my second treatment in 2020 rather than the first, but my taste is 95% what it was; even curries are good.
Keep the faith.
Metastatic SCC diagnosed 8th October 2013. Modified radical neck dissection November, thirty-five radiotherapy fractions with 2xCisplatin chemo Jan/Feb 2014. Recurrence on larynx diagnosed July 2020 so salvage laryngectomy in September 2020.
Thanks Dani I’ve already read your blog and most who’ve written one and has been a great help just can’t help thinking negative thoughts and finding it hard to keep positive I’m trying to keep myself and mind occupied I am usually a busy person work wise and have to much thinking time
kenny
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