Eating after Treatment

Hi John, 

It's a bit different for everyone, but fairly typical to be on the PEG only at this point. I think it was 3-4 weeks before I gradually started eating again. I more or less slept for the first 3 weeks. Eating does come back, but it can take time. I am 7 months post treatment now and still avoiding curry and having a lot of water. The mucous transitions to dry mouth. Keep up with your exercises so that you get your swallow back ok. Mine is fine now, but still do exercises to keep the stiffness at bay.

I'm sure you'll get more replies. 

Hang in there, Ronnie 

Hi Ronnie Thankyou so much for that.

It has given me refreshed hope and encouragement to fully use the tube.

Yes, I am constantly sleeping too at this moment.

Thanks again it's really perked me up as I so look forward to a proper meal.

God bless 

Hi John 

Its still really early days for you. RT effects reach their peak 2/3 weeks after the treatment is finished so you still have a little to go  

I had 6 weeks radiotherapy and had an NG tube for six weeks after treatment finished. I started trying to eat a little at three weeks and by six I could take enough by mouth to keep me going and dispense with the tube. 
Keep going with your peg feeds. You need Two or Three Thousand Calories a day to ensure you heal well so do try. 
I managed to keep on top of the mucous by steaming my head over a bowl of hot water a couple of times a day and by spitting a lot. Some people have a nebuliser to use and a humidifier by the bedside. 

Hope that helps and just stick with it. It does get better 

Best wishes 

Hi John I was n g tube fed totally from week 3 treatment tj week 3 recovery when I very slowly started to introduce food  orally. Keep uk with the peg feed like Dani sats you need between 2-3000 calories and 2 litres  of water each and every day. I was told fir first year to aim for this plus 85 gram of protein. I did most days and maintained my weight but I didn’t put any in until at least 15 months . Your body needs food to help heal. So it’s early days for you just keep on plodding in with your peg as main source. By week 6 I was eating 50 percent food and 50 percent  ensures. 
As for mucus it goes as quickly as it came to be replaced with the dreaded dry mouth. I used a nebuliser and s humidifier up to  week 12. 
hope this helps. 
Hazel

Thanks Beesuit for your encouragement. 

Thanks Hazel for your kind words.

Hi John you’re welcome ask anythjng one of us can normally help. Nothing beats first hand experience. 
Hazel x