End of week 2 treatment

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It has been 2 weeks of slipping into a routine I never imagined I would have. Am grateful that nausea from the chemo has not made too much of an impact yet but am aware this could change weekly or overnight. My mouth is starting to be sensitive, dry and taste buds are most strange. By the end of the week of treatment  I am tired and my brain seems so woolly after RT. Week 3 is looming and I am expecting more drastic changes. Meanwhile the hunt is on for what can relieve constipation. One thing I hadn’t anticipated… 

  • Hi Marwari

    Ooh constipation.  Yes.  Something most of us have suffered with during treatment due to some painkillers.  I was prescribed Laxido which did the trick.

    Good luck with your ongoing treatment.

    Linda x

  • Your team should give you Movicol or Laxido. One or two sachets daily while you’re on treatment and morphine or codeine. I took it by rote and suffered little. In fact I reckon morphine in any form should come with laxatives in the same packet Wink

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi you’ll need movicol or laxido normal laxative s just won’t work. If you can’t get prescription over weekend pkease buy some as impacted poo is something you really don’t want. You can take up to 6 in one go read the instructions  then I used to take 1 or 2 daily you need to be regular. Great topic of conversation lol. 
    pleased you’re coping ok. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Marwari You are doing it so stick with it . Its very important to get rid of the constipation as its a pain in the butt excuse the pun . Get on the laxido asap and that will keep you regular . I found tepid water to rinse my mouth first thing in the morning really helped. All the Best Regards Minmax 

    • Thank you so much for all your suggestions. Really helpful plus amazing what friends have suggested too. Have found lactulose to be good. Bought over the counter at the chemist. Thank god I can keep off the prune juice, syrup of fig and aloe Vera juice …. Yuk !!! 
  • I can’t understand why you didn’t get laxatives with the morphine. When I collected my first box I got given laxido first. “Take two a day” thundered the nurse, “with  out fail! Wink

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Marwari, at the same stage as you, now into week 3......I have been struggling a bit with eating due to lesions on my tongue this week Disappointed  like you was waiting to hit that brick wall! 

    I got some supplement drinks today so will use them tomorrow but did manage to eat soup tonight and pudding and custard and soggy weetabix is fine too and rice pudding!

    I had come off most of my painkillers I had been on but got told today to get taking full paracetamol daily and I've been taking pregabalin for months and nurse said would get oramorph next week.  She stated in no under certain terms the painkillers were the only way to get through this treatment and take the lLAXATIVES RILLIGOUSLY!!  ...I.told her I had taken them when on codeine but then worry about shitting myself travelling to radiotherapy appointments daily!!  I got given laxido which seems to be quite effective but stopped codeine a while ago as chemo helped my facial pain.

    My paracetamol now goes in the PEG and hopefully pregabalin will too as couldn't swallow the paracetamol.   I actually seem to get most side effects from the steroids after chemo......keep you awake/space me out a bit which is ok now I took sick leave from work last week.  

    Positive thoughts coming your way for the rest of this week and into week 4, keep us posted on your progress if you feel up to it xx 

  • FormerMember
    FormerMember

    I have been given lots of different stuff from doctors but what I find works best and have been using for 10 years is califig - syrup of fig won't give 8t on prescription as classed as a natural remedy. But it works better than anything I have ever tried. 

  • Having been through the treatment with chemo and radio it does make me wonder . I was told I had cancer over the phone . I was sent home from chemo with no anti sick tablets which aint cool. Also my morphine amounts were not right but hey hoo. I only read the cancer book after doing all the treatment which is my own fault so stupid me. My treating was great and cannot complain about anything really. My advice to anyone going through it is to read here and get all the information as it really does help. My Son got me audible books or the like which I listened to which I highly recommend as time will fly past . All the best Regards Minmax