Mucus following glossectomy

FormerMember
FormerMember
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Hi Everyone,

Thanks for all the response and offers of support I received on my last post regarding my mum. It’s been a really busy few weeks, op on the 12th July where 85% tongue was removed with free flap reconstruction using thigh as donation site. Full neck dissection with lymph nodes removed on both sides. One disaster of a RIG feeding tube, followed by displacement, hospitalisation and then replacement and now on day 4 of 37 radiation sessions!!

My mum is doing well, talking (although she is really hard to understand) but unable to take anything orally due to aspiration. However recently she has been producing a lot of saliva, then every morning and a few times during the day having really really thick/ sticky saliva or mucus. This chokes her and makes her retch to bring up. We then have to really ‘scoop’ it out of her mouth using foam swabs. And it is a lot!! It takes about 10 swabs and tissues to get it all out. She is already on carbocistine and uses a nebuliser to try and keep it thin. I am at a loss what else to do and I am so worried the radiotherapy side effects will just make it worse. If anyone has any tips or words of advice they would be grateful received Slight smile

Thanks! X

  • Hi Peggy. Yes her RT will make the situation worse. See if you can increase your mum's fluid intake via her feeding tube to around three litres a day. This will help dilute the mucous but I think in this case maybe it would be best to tackle her team for some sort of suction device? See what they say on Monday and make sure you get some sort of advice straight away?

    Let us know how it goes and good luck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • FormerMember
    FormerMember in reply to Beesuit

    Thanks Dani, I am keeping her well hydrated but not 3 litres, we are probably managing 2 so will try and increase it. I did think about a suction machine (she had one in hospital when her trachy was in) and wondered if it might help. Will definitely bring it up in review next week- thank you very much for replying.

    xx

  • I hope they can sort things out for her. It must be a worry and it's great you can help out.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Peggy. Unfortunately I have ti agree with Dani the radiotherapy will increase the mucus. I was also using swabs carbusistine and a nebuliser. Are you using the nebuliser frequently? I was at least 6 times a day alternating between saline and plain boiled water (cold). Yes I would speak to her team asap.

    Let us know how you get on and good luck
    Hazel

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thanks Hazel, we were using the nebuliser a lot and then she didn’t want it as felt she was coughing more with it. However now back to at least 3 times a day. I worry about using it too much too early- we are only 4 treatments in with 33 to go.  Mum was also on patches behind her ear to stop over producing saliva which her oncologist has stopped today (after nurse went to speak to her as mum couldn’t get through the radio session at first because of choking on it) as thinks that might be contributing to the mucus production. 

  • Hi, Peggy 21 I have a suction machine which my wife got me after my treatment, you are more than welcome to it. I have sent you a friend request, so I can send you a message to work out how we can get it to you, if you would like it.

  • Bless you old biker, this is what this forum is all about! 

  • FormerMember
    FormerMember in reply to old biker

    Oh that is so kind of you! Thank you so much for offering but I have actually ordered one that is coming on Monday on the back of everyone’s advice. I couldn’t be more grateful for the offer though.