Hi, i'm a newbie and just starting my unplanned journey

FormerMember
FormerMember
  • 10 replies
  • 152 subscribers
  • 1375 views

Hi just had my rig fitted a couple of days ago, unfortunately for me was a painful and unpleasant experiance, still in pain but meds do help.

Chemo and radio start tomorrow on my tonsils, neck and lymph modes so staying positive and determined to fight this bad a.s

  • Hi Supernana and welcome to the community. There are lots of folk here who have survived what you are about to and thrived afterwards. No question is too daft so come back if you need any support 

    There are one or two starting tomorrow too

    Best of luck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi supernana welcome t the club none of wanted to join. I am now 3 years post radiotherapy for tonsil cancer with several affected lymph nodes. Am living my life to the max. It’s not easy but I’m a wimp I did it like many others. Any questions just ask. 
    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Good luck for today, supernana

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • FormerMember
    FormerMember in reply to Beesuit

    Thanks Beesuit, your name made me laugh as I got stung by a bee and crashed my car the same week I was confirmed with cancer .

    Hope you are well.

    Karen

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thanks Hazel, great knowing I can check in and know what everyone's been, going through so I know what's normal or not.

    Karen

  • FormerMember
    FormerMember in reply to Beesuit

    Hi again, I will eventually get used to this, chemo was cancelled today too buzy? Rt done, 1 down 29 to go, rig stitches were extremity  tight (hence so much pain) these were taken out this morning, so much better.  Another day completed

    Hope your doing ok.

    Karen

  • Hi Karen am sure they’ll fit you in this week a few days won’t matter. Chemo is the add on the radiotherapy is the main event so ti speak. Yes a countdown list is good I used a marker pen to x them off. 
    hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Oh dear............I bet it was a wasp though

    I keep bees .....hence the moniker.

    Hope the rest of the week goes smoothly for you

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Karen,

    Hope the first week has gone OK. I posted weekly countdowns on my Instagram. Sorry to hear about rig pain, hope that's all eased now and that they got you in for your chemo and that you didn't have issues with that.

    Treatment can feel a bit of a slog some days, but it is very effective. I was in first weeks of treatment 6 months ago and have just finished my first full week back at work. 

    Take care, Ronnie 

  • FormerMember
    FormerMember in reply to Ronnie95

    Hi Ronnie, not been a great start, rig feed is infecfed and taking strong anibiotics which have made me really sickly and weak. Hopfully this will improve so I can feel stronger for the oncoming  months.

    Ive just been unlucky and need  to push forward as still a long way to go.

    Hope you are feeling well and enjoying workinhg again.take  take.

    Karen