Hi

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 Hello all,

I was diagnosed with cancer of the tonsil ( P16 +ve) which had spread to some of the surrounding tissue in June this year. Following this I had some preliminary tests and dental work prior to six weeks of radiotherapy and chemotherapy which I have just completed. 

During this period my focus had been on the treatment however I now need to shift that  to my recovery and I am now finding that other people’s experience in this group is very useful. I, like many contributors, feel absolutely battered by the range of side effects and can identify with many of the symptoms experienced by others. This does does provide some reassurance.

I have noticed a few comments and concerns about feeding tubes. I had RIG tube inserted prior to treatment and although I have some problems with infection at the site I am almost totally reliant on it for nutrition using Fortisips. I am really struggling to eat at present but find this method easy and convenient.

- J

  • Hello John and welcome to these forums. We are both about the same stage of ‘recovery’ and experiencing similar side effects - finished 30x radiotherapy in 23/7 but no chemo.

    I have tried various tit-bits of solid food with some small success but I only have a small sense of taste at the moment.

    I also have a RIG fitted and feeding Jevity supplement overnight; which gives me ~2300kcal and I have no hunger pangs.
    Stick with it Thumbsup

  • Hi John,

    Good that treatment finished. Yep, eating was worst for me in the 4 weeks after treatment. It does get better,  in small steps and the occasional leap. I'm 5 months post treatment now and over the last week my taste is almost back to normal and I'm starting to enjoy food again. Keep experimenting and you'll get there.

    Take care, Ronnie 

  • Hi Sounds like you are both doing good . I am 7 months since treatment and things are improving on the taste and eating front . Stick with it . All the Best Regards Minmax