Hi, I’m new here, I been reading posts for a few weeks and trying to cope with my feelings but I’m so scared. I have recently had a biopsy on a lesion in my mouth that was not healing. The results were that it is a Licenoid reaction with mild dysplasia. I know this is a pre cancer and so many of you are dealing with so much more than me, which is why I was ashamed to post, but, I’m struggling so much some days I don’t want to wake up. My consultant is concerned because the biopsy site is not healing and wants me to have the area involved removed and further tests done on the tissue. The surgery was scheduled for last Friday but got cancelled, my consultant has now gone on annual leave, I feel like everything is getting worse and I’m constantly looking in my mouth and noticing all sorts of things I’d never noticed before my anxiety is through the roof. I’ve spoken to my GP about how I’m feeling he gave me some beta blockers for the anxiety but they gave me a terrible dry mouth so I’ve had to stop them, the dry mouth added to the anxiety. I phoned the hospital to tell them I’m struggling but they have said the consultant just had to prioritise which I understand but this waiting is crushing me. I not been seen now for nearly 4 weeks, going to be at least September now if I’m lucky, so so sorry for this post, but I know there are people here that will understand, I cry constantly, I’m totally overwhelmed with everything. Thank you for listening x
Hi there. I understand the worry. I am very new here myself. The waiting is absolutely awful. I found short walks and fresh air helped to calm me. Sending you all best wishes. Lizzie
Hi Half a cup Really sorry to hear your finding yourself in this position. Something you have to remember is this is only temporary and this will all pass. It is perfectly normal to feel the way you do . I can fully relate as I have been like that for the last few weeks and thought sod it and went to see a counsellor which has really helped me big time. It really helps to talk to someone maybe a close friend or relative. We are all here for you if we can help, Chin up and try and think positive , No matter how bad you think things are there is always someone worse off than you . All the Best Regards Minmax
Hi half a cup. Sorry you’ve been left in the lurch like this. Your consultant isn’t taking any risks with your health. If he suspected any urgency in your situation somebody else in his department would be looking after you. I have a neighbour who did indeed end up with a small easily resectable cancer after lichen planus but she had lived with it for fifty years. So try not to worry. My advice would be to stay off Google or you will frighten yourself to death with inaccurate information.
There are far better antidepressants than beta blockers do it might be an idea to go back to your GP.
Seotember is not too far away so please try to keep your mind on other things.
I was diagnosed with a tongue cancer that was obvious in August and I wasn’t treated till December and they fixed me
Best wishes
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Half cup
I found my lump in my neck in late March was on holiday in Spain still had weeks before we can home I had no idea what it was so carried on with our trip. On our return mid May went to g p got referred 14 days cancer pathway treatment started mid July snd 3 years later I’m typing this. Am sure if your consultant was concerned he will have others who would have stepped in. So what I’m trying to say is relax go to g p maybe he will prescribe anti depressants as beta blockers don’t seem to be right for you.
The waiting is never nice
Hazel
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thank you so much everybody, all your comments have really had an impact, I need to calm down and stop the mind chatter all the time. I had already done the Dr. Google bit which was no help at all just scared the life out of me, I’m not going to do it again, I will turn for advice to this lovely community, thank you so much for taking the time to respond xxx
That’s better. Take a deep breath and come back here for a shoulder to lean on. There are lots of broad ones here. Hopefully you won’t need them
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
It is quite normal to feel like this. The waiting for diagnosis is the worst and our imagination goes into overdrive thinking the problem is getting worse. Stop looking for things that are wrong. Easier said than done. I had appointments cancelled cos of lockdown and covid which made me imagine all sorts as I was an urgent case. I kept chasing it up every month and eventually got seen. If it was really bad they would refer you to someone else and see you sooner. Anxiety is awful. Try to relax. Get some lavender essential oil to smell. I also have a herbal tablet caĺled Kalms which I take when I get really bad. Hope this helps.
Glad to hear. Good luck for Tuesday. Hopefully it will go ahead this time.
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