Hello
I'm here on behalf of my Husband who has been diagnosed with cancer of the tonsils, its in his right tonsil and base of his jaw. He has just started Chemo yesterday (9 weeks of chemo then 7 weeks of radiotherapy, he has had the healthy tonsil removed but is having problems eating as he can only open his mouth 1 finger bite) Its all been surreal the last few months. I will have a read on this site and see what advice I can find.
Hi and welcome
sorry to hear about your husband
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
You’re bound to have masses of questions on the way so just ask away. There’s always plenty of good advice and sympathy here. No question is silly. Stay off Google too
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi Welcome to the forum but sorry the reason why you are here regarding you husbands diagnosis. Yes the early days of a diagnosis can be so surreal. I did not have tonsil cancer so I do not know much about this but I know some of the side effects of surgery and radiotherapy can cause us to suffer similar side effects. If your husband has not already then he may soon be given advice and support on how to open his mouth wider by a member of his medical team.
I wish your husband all the best with his treatments and we are here to help when you need our support.
Best wishes
Nicky
Hi welcome to our small community sorry you have to find yourself on here. I had tonsil cancer with several affected lymph lymph nodes my treatment was 35 radiotherapy snd 3 large doses of chemotherapy cisplatin.I was n g tube fed after week 3 had your hibby bern offered a peg or nasal feed tube ? It sounds like he may need one or the other. After treatment I had the ensure hig calorie drinks which you can eat with a straw. I was lucky coukd always open my mout. You shoujd have a speech and swallow team are you in the U.K. ?
pop on with questions
hazel c
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Thank you, I will have a look at your blog.
My husband doesn't eat fruit or veg, has a bland diet before all this happened. I have brought him Complan shakes and Protein milkshakes to help him. He hasn't eaten a lot since Chemo has started, but is very sleepy and feels nauseous after taking tablets. He had his 1st injection last night which was hard to do, as we are both quite anxious about it all.
Thank you for your reply Hazel. He hasn't been given a tube or peg, he has the chemo in a slow release pump. As mentioned above he is very sleepy and feels nauseous after the tablets.
Yes I am in the UK. I will have a look at your blog too, I am still in a blur with it all. He had a cough back in March this year, then it developed into a lump on the side of his neck. Its been all go since May. I can't fault our local Cancer Unit they have been really fast and have kept updated all the time.
Thank you Nicky for your reply and kind words.
Hi have you had meeting with dieticians? He will need to keep his strength up to face the rigours if treatment I was told 2500 calories a day by what ever means I could . Hence the nasal feedingbtube when swallow became too difficult .
Good that the cancer centre is on the ball we do find we have to be pro active on our own behalf s as well Don’t sit back .
Hazel x
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Hi
is your husband on 5-FU?
Ak the hospital for prescription Fortisips or Ensures. They are a complete liquid diet replacement
He should get them free
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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