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FormerMember
FormerMember
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Hello 

I'm here on behalf of my Husband who has been diagnosed with cancer of the tonsils, its in his right tonsil and base of his jaw.  He has just started Chemo yesterday (9 weeks of chemo then 7 weeks of radiotherapy, he has had the healthy tonsil removed but is having problems eating as he can only open his mouth 1 finger bite)  Its all been surreal the last few months.   I will have a read on this site and see what advice I can find.

  • Hi and welcome 

    sorry to hear about your husband 

    • Dont despair. There are lots of recipes for healthy smoothies on the Web if your husband can’t chew. Plus the usual food replacement drinks you can get from the his hospital 
    • Has he been fitted with a stomach tube?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • You’re bound to have masses of questions on the way so just ask away. There’s always plenty of good advice and sympathy here. No question is silly. Stay off Google too 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi   Welcome to the forum but sorry the reason why you are here regarding you husbands diagnosis. Yes the early days of a diagnosis can be so surreal.  I did not have tonsil cancer so I do not know much about this but I know some of the side effects of surgery and radiotherapy can cause us to suffer similar side effects. If your husband has not already then he may soon be given advice and support on how to open his mouth wider by a member of his medical team.

    I wish your husband all the best with his treatments and we are here to help when you need our support.

    Best wishes

    Nicky

  • Hi welcome to our small community sorry you have to find yourself on here. I had tonsil cancer with several affected lymph lymph nodes my treatment was 35 radiotherapy snd 3 large doses of chemotherapy cisplatin.I was n g tube fed after week 3 had your hibby bern offered a peg or nasal feed tube ? It sounds like he may need one or the other. After treatment I had the ensure hig calorie drinks which you can eat with a straw. I was lucky coukd always open my mout. You shoujd have a speech and swallow team are you in the U.K. ? 
    pop on with questions 

    hazel c

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to Beesuit

    Thank you, I will have a look at your blog. 

    My husband doesn't eat fruit or veg, has a bland diet before all this happened.  I have brought him Complan shakes and Protein milkshakes to help him.  He hasn't eaten a lot since Chemo has started, but is very sleepy and feels nauseous after taking tablets.  He had his 1st injection last night which was hard to do, as we are both quite anxious about it all. 

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thank you for your reply Hazel.  He hasn't been given a tube or peg, he has the chemo in a slow release pump.   As mentioned above he is very sleepy and feels nauseous after the tablets.  

    Yes I am in the UK.  I will have a look at your blog too, I am still in a blur with it all.  He had a cough back in March this year, then it developed into a lump on the side of his neck.  Its been all go since May.  I can't fault our local Cancer Unit they have been really fast and have kept updated all the time.

  • FormerMember
    FormerMember in reply to Sporty Nicky

    Thank you Nicky for your reply and kind words.

  • Hi have you had meeting with dieticians? He will need to keep his strength up to face  the rigours if treatment  I was  told 2500 calories a day by what ever means I could . Hence the nasal feedingbtube when swallow became too difficult .

    Good that the cancer centre is on the ball we do find we have to be pro active on our own behalf s as well Don’t sit back .

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi 

    is your husband on 5-FU?

    Ak the hospital for prescription Fortisips or Ensures. They are a complete liquid diet replacement 

    He should get them free 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge