Hanging around

FormerMember
FormerMember
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Struggling with the hanging around. One more scan on Monday then just to wait and see what they say. 

Im really worried they say it’s terminal I mean it’s driving me  mad.

  • I know it’s hard but there is nothing you can do so please try not to stress about it. There’s no earthly reason given the symptoms you’ve described previously to indicate it could be terminal. Can I suggest you leave the internet alone. Put your trust in your wife’s team and go and give her a cuddle. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi please stay calm there’s no reason why your wife’s diagnosis would d be terminal . I am 3 years post radiotherapy for tonsil cancer with several affected lymph nodes at minute sat in motor home planning tomorrow s bike ride. As Dani says keep off google you will drive yourself mad. 
    I am now 64 living my life almost as before 

    Hazel 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • FormerMember
    FormerMember in reply to RadioactiveRaz

    Thank you both, she said she can handle being ill if they now they can fix her that’s the hard part x

  • That’s the difficult part. After self diagnosis I got my affairs in order left instructions for my husband how to run the house and organised my funeral. So I really do know how you feel. My husband had more faith in the NHS than I did.
    But my consultant sat me down with my consent form and said he would cure me. So far he has. once you and your wife have a treatment plan your feet won’t touch the ground as a well oiled machine takes over. Keep the faith. This cancer is eminently treatable. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi I looked back at your previous post and there is nothing in your post to suggest it has not been caught at an extremely treatable stage.  The only people who will really know are your clinical team with the benefit of the diagnostics, but many of us have personal experience of this cancer.

    I think all partners struggle far more than the patient throughout this stage and probably into the treatment stage.  It is perfectly normal to feel how you do.  After all your wife is more in control of her body and wishes than you are.  I describe it as my wife just coming along for the ride to support me in my decisions and my treatment.  That may sound harsh, but that is the reality.

    My wife has been amazing -  and you will for your wife when she needs you.  We are here to support you and answer whatever questions you ask and gently offer some guidance.

    After that last scan, come back on here and tell us how it goes and when you expect the results - I would guess 10 to 14 days later.

    Peter
    See my profile for more details of my convoluted journey