Advice in hair loss and will I lose my teeth!

Hello Nightsky! Welcome to the group. I'm really sorry you're having to go thru this  but u are in good hands with all these wonderful good good people on here. There's loads of info and support from the folks on here so ask all u need and want. 

I was diagnosed with snuc in September 2019, after 3 rounds of TPF chemo, 35 sessions of radiotherapy with cisplatin combined, I got the all clear last June! 

It's gona be tough Nightsky, my radiotherapy was aimed between my eyes, beside my eyes and my nose and neck. I lost all my hair thru chemo but the radiotherapy took my lashes and brows. Brows have almost grew back, I've got a half one and a third one lol, but that's easily filled in with all the pencils and whatnot available. My lashes are coming very very slowly and I have continual burny watery eyes.... I still have very very little saliva and no smell or taste. But I haven't lost any teeth! And that's after a year with no saliva! Plus I'm still here!

Just take 1 day at a time Nightsky, ask for everything u feel u need help with. Its perfectly normal to feel terrified and frightened, you're entering the unknown but come on here and chat, these people helped me so much after treatment (I didn't know this site existed till after I'd gotten the all clear) so there's loads of people who have been thru it and know what they're talking about!

Take care Nightsky, you've got this

Hi Dani

Sorry to hear about the cold and sore throat what a bummer and having to spend 2 hours with your mouth open at the dentist to top it off. Some days are best left behind. Hope you wake up tomorrow feeling happier.

Best wishes

Lyn

xx

Hey Sophie....thanks for that (and sorry for hijacking the thread

Hope you are keeping well.

Hi Dani

I’m fine thanks getting on with life still getting used to the side effects of treatment but life’s good.

Hope all is well with you too.

Lyn

xx

Hi Tanya

thanks for sharing your story as it helps others suffering from similar symptoms.

can I ask pls, what helped you with nose blockage? My husband has nasal and sinus cancer and has had radiotherapy and chemo but 4 weeks later his nose is being blocked we believe it’s due to dried up mucus.. did you have this and if so what did you do to relieve this ? 
sorry to ask but I am trying to find something that will help my husband with this side affect so he can breath a bit better. 
thanks you for any advice you may be able to give xx 

And hope you are getting better ️‍ 

Good evening,

I hope your husband is well and coping with the side effect’s, it isn’t easy. 

To be honest I had to go in for another op at the end of November and my scar tissue over healed and my nasal passage became blocked so with the regards to the mucus I improved then went back a step. I have discovered using a nasal wash helps, I use . 

this one a couple of times a day and you will be shacked at what comes out. 

I hope this helps, take care. 

Regards, 

Naomi

Hi there, this thread popped up in my emails, I hope u don't mind me butting in lol.

Naomi is spot on regarding the neti pot, I couldn't be without mine. I use a measuring jug filled with water and a slightly larger neti pot which is a squeezable bottle. I prefer the squeezable bottle as I can get a really good gush of water up my nose and I'll get 3 fills from the measuring jug. This will definitely clear out his nose and sinuses. If he doesn't get any relief then I'd speak to his consultant, he should be getting the camera up his nose every 2 months? 

There's also a machine called sinupulse elite, its expensive but the company told me where a neti pot is like a garden hose the sinupulse elite is like a power hose.... I haven't tried it as my own neti pot works for me. 

Hope this helps! 

Dee 

Hi Dee

thank you for the advice, we do have the sinus nasal bottle rinse and it only works for a bit but never fully clears, it’s like it the mucus turns into crust at night and in the morning when he does another rinse it won’t come out. We will speak to the oncologist if it does not get better as it can be very frustrating for him.

thank you for your help x

Hi Asettle, has he tried putting olive oil in the neti pot? I tried that and the inside of my nose felt lovely and moisturised. I've heard people talking about white vinegar also but I haven't tried that. 

It is very frustrating, it's really about getting used to this new normal.... but he will get there, once he gets a handle on what works best for him.... but def try the olive oil and if he's getting a good powerful skoosh from the neti pot then he's doing everything he can and it might be time to speak to the oncologist.

Hang in there