Finished tuesday 15 sessions,radiotherapy on neck and ive spent the last 2days in bed,so tired,and my mouth is sore,but my throat is the worst,hubby said ive got ulcers at the back of my throat! I feel like a lump is in there,I cant eat apart from liquids,ive got every potion prescribed and I know its early days,but boy is this hard ..I had major surgery in may but I would say this is feeling worse than that...the only tim I escape is when I sleep!
Shouldn't really complain because I know theres people out there in a much worse position xx just kinda feeling sorry for myself xx
Good morning Moxy1, I can feel for you,as I mentioned, I watched my hubby going through this. He had 30rds of RT and 2 8hr long cicles of CR. After finishing, he was so fatigued,he slept for days on end. Couldn't eat solids,let alone swallowing liquids. He was reliant on his PEG. And lost a lot of weight. Can't remember on how many different painkillers he tried. It took him a few weeks to feel some kind of better. As so many been saying and I have to agree I am afraid, this one is a long way to recovery. So persist and stay strong. You will get there. Sending you big hug. Fellow wife Mel x
Morning Sue
I know just how you feel. I slept for two weeks, just changing from bedroom to sofa.But I'm not here to tell you how awful I felt...you know exactly. I'm here to convince you that there's an end to it all.
Sleep
You need that escape but it's what heals your body and keeps you sane. Just don't let the real world intimidate you when you wake. This is indeed temporary...At least I was tube fed so didn't have to even think about swallowing. Just plod on...feel sorry just now because you need to...it's not fair! but one morning soon you'll wake up and feel just that tiny bit better and that's just the tiniest chink you need to scramble through. Don't look for that chink it will be there as if by magic.
Come chat to us every day. We'll help keep you going
PS
Have you got oramorph? It's a game changer. If not get your husband to get some from your GP. Your hospital should give the practice the OK so maybe a call to your CNS is in order too
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