Receive good news followed by the bad news - Devastated

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Update on CT scan with oncologist today. Good response to the chemotherapy and no spread. Thats the good news. Now for the very disappointing bit. My partner has been unable to swallow since his oesophagectomy in November 2024. His speech was restored in August 25 to be taken away due to a recurrence of cancer in lymph nodes pressing on laryngeal nerve. Chemotherapy started in January 26 but in all of this he needed a tracheostomy which is still in place. There is shrinkage of the lymph nodes but as the cancer has eaten into the nerve it’s now unlikely that the tracheotomy will ever be removed. He will now have targeted radiotherapy to control the cancer. To recap: he can’t swallow and can sort of speak with the tracheostomy. He was such a fluent and intelligent speaker. He loved to discuss ideas, chat with friends. He got so much enjoyment from his French speaking classes. Now all of that has been lost. And of course is now dependent on tube feeding. I’m devastated and so sad for what has been lost. Thank you for reading. Anne

  • Hi Anne. I am so sorry to hear about your husband and your situation. It is a difficult time for you both. It is so hard to come to terms with such a life changing event. There are several people on this forum who have also had long term tracheotomies and are permanently tube fed. I am sure that one of them will pop up and give you some encouragement and tell you about their experience. I do hope that hearing from people in a similar circumstance and how they have managed the situation will be helpful to you both. 

    Sending you both positive thoughts.

    Lyn

    Sophie66