Proton beam vs radiation

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I have right tonsil T1 N1 HPV  16 Positive

The tumor board recommended chemo radiation six rounds of cisplatin weekly 35 rounds of proton beam

Should I get a second opinion from Mayo? I'm close to starting the therapy here in a couple weeks... I was hoping maybe surgery and then maybe just do radiation with no chemo but the ENT surgeon said he could maybe do the surgery that I would probably need the chemo radiation anyway is what he said on the tumor board

Has anyone used the proton therapy beam instead of the radiation therapy?

worried about the long-term swallowing and salivary gland issues also

  • I was not offered it...but if it does less damage and is a kinder treatment that must be a massive plus...good luck....the link below may be helpful.

    Proton beam therapy | Macmillan Cancer Support

    Michael

  • Hi,

    Ive Just finished 30 rounds of proton beam therapy.  It was a recommended treatment because I had recently (6months) finished radiotherapy.  It is more targeted than radiotherapy ,and in my case reduced the risk of any overlap/damage from first treatment. As to side effects ; i think you'd have to ask ,because it depends on where its directed.

    My experience was more favourable than first time because area of treatment was smaller.  I had concurrent chemo during same period . 

    Hope that's a small insight 

    Greg

  • Has anyone used the proton therapy beam instead of the radiation therapy?

    Proton is radiation therapy just more finely targeted so acute  effects should be less intense. There is no exit beam at the back of your neck so that’s better for the vertebral arteries supplying your brain. You will still lose some salivary function though as the beam has to enter through your neck. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks....It's handy to know that PBT is another treatment option for some H&N cancers... after CRT

    Michael