PEG Fitting Experience

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I wanted to take some time to share my personal experience of having a feeding tube fitted, as I know that for many people considering this procedure, the unknown can be incredibly daunting – and I hope that talking through my journey might help others who may be feeling the same way I did not so long ago.

In the weeks leading up to the surgery, I was overwhelmed with anxiety. It felt like every thought I had was centered on what the procedure would involve, and I found myself experiencing significant physical symptoms of stress too – I was constantly sweating, my hands would shake even when I was trying to stay calm, and there were moments when I struggled to focus on anything else. In fact, I reached out and posted about my concerns here on this platform just a few weeks prior, as I really needed to connect with others who might have been through similar experiences or could offer some reassurance.

Thankfully, the actual procedure itself turned out to be far more straightforward than I had ever imagined, and it was completed relatively quickly. I had been worried about pain, but I was pleasantly surprised to find that it was nearly pain-free throughout; while there were a couple of moments where I felt a slight sense of discomfort as the tube was being positioned, I could barely feel much at all. The medical team was incredibly attentive, checking in with me regularly to make sure I was okay and explaining each step of what they were doing, which helped to keep me feeling calm and in control.

Following the surgery, I did experience some mild tummy pain, but this was easily managed with regular doses of paracetamol, and it began to ease off within a matter of hours. The staff on the ward were fantastic at monitoring my recovery and making sure I had everything I needed to stay comfortable.

The day after my surgery, I met with a dietitian who guided me through all the training I would need for using and caring for the tube. I had been concerned that this part might be complicated or difficult to get to grips with, but once again, everything was explained clearly and proved to be very straightforward. They walked me through how to administer feeds, how to keep the insertion site clean and healthy, and what to do if I noticed any issues or had questions further down the line. They also provided me with detailed information sheets to take home, which have been an invaluable resource as I continue to adjust to life with the tube.

  • Hi Black Sheep. So glad to hear that you are managing well with the tube. Thanks for sharing your experience as it is definitely something that can cause a great deal of concern for people. It does go to show that the thought of something is often much worse than the actual event. How long is it now since you had the tube and how are you going with eating and drinking?

    Lyn

    Sophie66

  • I’ve had it for a few days now. Apart from some mild soreness and needing to take care when getting up, everything’s fine. I only run one meal a day through it because I’m managing to eat well by mouth.

     I tried cleaning the area the day after the procedure and ended up passing out – I spotted a bit of dried blood, and I suppose I’m just not good with things like that I was a complete nervous wreck right before the operation, but overall, it went pretty well for me.

  • PEG tube was a life saver for me, bit of a pest at times, the 'Y' connection became brittle and split after a few weeks, I had been given a spare 'Y' connection so Abbott were obviously aware of the issue, no problems with the repair....had a couple of site infections which required treatment, antibiotics and antifungal cream.

    Michael

  •  I’ve recently purchased two elasticated belts from Amazon, specifically designed for the Peg rig tube. The pipework is fully protected and neatly organised, to the point where I can hardly notice I’m wearing one. They also give me a welcome boost of confidence, whether I’m going about my daily activities or sleeping at night.

  • Thank you  for this. I'm glad the experience wasn't too bad. I recall how anxious you were. I've bookmarked this thread so that in the future folk equally worried can read it.

    Happy New year and I hope the rest of the treatment goes as well as it can

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • This is so lovely to read as i have heard of so many people who seemed to have struggled with having one fitted, although a lot of them were the fitting of a RIG, which is the same principle but fitted differently. Like you, i had a PEG fitted, and like you, i coped very well with it, and still do. Thank you for posting this encouraging feedback. Take care.

                                                               Chris .

    Its sometimes not easy but its worth it ! 

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