Post treatment Rig Issues!

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Hello,

I am 3 weeks post treatment(2 cisplatin, 30 rad sessions) and still have my RIG fitted, I am starting to eat alot more myself during the day, moved to a stage 6 diet already as my swallow is fairly strong! 

I am really starting to struggle with the more normal food I consume, the sicker my RIG feeds are making me. 

Has anyone else experienced this? I am hoping to have this rig out as soon as possible as it's been a life saver and i couldn't have done the treatment plan without it, but it's the one thing I've struggled to come to terms with during the whole process.

  • Hi Davy, like you I consider my RIG to have been my lifesaver. When I started to eat more solid type foods, I cut down the amount of my overnight feeds through the RIG, until it was no longer needed, then the district nurse removed it. Fortunately, I didn't have any problems with the RIG, it didn't make me feel sick or anything like that, I just classed it as a necessary part of my treatment. You seem to be doing very well with eating so early into your recovery, all the best.

    Ray.

  • DaveyD - speaking from personal experience having had a OEG during treatment and now permanently fed using a RIG, I’d hold on to the RIG as long as possible ‘just in case.’ I know that’s probably not what you’d like to hear but it’s so much easier to remove it (and less stressful) than to have to have it inserted again.

    As far as the nausea is concerned, I found the same thing when transitioning to ‘real food’ - my only guess was because I’d had to depend on the medical meal concoctions for so long that getting back to a normal diet was a bit of a wrench to the system. Obviously, everyone reacts differently and what is typical for one person isn’t for another. I’d reach out to your Community Dieticians to get some feedback from them?

    Reevsey