Post surgery, post radiotherapy.
Still sore and swelling around my mouth and neck.
Suffered severe skin reaction to radiotherapy and really suffered with mucositis; new sores around my mouth daily as a result of this until a week ago, the sores stopped just leaving several lumps on my lower lip which are really sore. .
The surgeon mentioned possibly having a biopsy on these lumps but would need to bring forward my "3 month scan" first.
Saw him last Tuesday and scan tomorrow.
If the cancer is still there or has recurred, I don't see a way forward. I couldn't cope with another lot of radiotherapy. Not much left to operate on if you know what I mean.
Maybe I just need to wait and see. Can't help wondering, thinking ahead, trying to work out what if anything to do next. Supposed to be moving house soon.
Do I carry on as if there is nothing to be worried about or put things on hold?
Sorry to take up space, needed to talk about this to someone who might understand.
Whatever happens to me, I wish everyone on here all the very best, hoping your news is good and that your lives are getting better post treatment.
Take care.
Jeaniebutterfly.
Good evening Jeaniebutterfly. Good luck with the scan tomorrow. if it is anything sinister, it could be an operation as they would not normally do more radiotherapy, but let's see what the results are from the scan and possible biopsy. Hopefully, its something simple. I know treatment and surgery have changed since i had my last operation in 2010, offering different treatments and better surgery. There is nothing you can do until you get the results, so fingers crossed for you.
Chris x
Keep the faith Jeanie, I’m still suffering a bit too but we fight on , I really hope you find the strength to get through . I was diagnosed with throat cancer on 3 days before Christmas 24 and lost my dad in January so was a hell of time . I Am just about 3 week's post chemo radiotherapy and my taste is shot to he’ll my throat feels like an acid bath when there is any saliva there to lubricate it ! the dry mouth is Namibian desert dry ! I haven’t worked since September last year and being a seaman agency worker I only earn when I’m offshore ! So I understand the stresses your having the mental side of this journey is the hardest bit for me and it’s pushed me to the edge a few times . Let things take their course and just make sure that every party that need to know is aware that things can change and that there are no rules . Listen to your body and don’t push yourself physically or mentally unless you’re focused on you and getting better . Good luck pet x
Hi Jeanie. Being in the 'no man's land' while waiting for test results is really tough. The not knowing and thinking the worst is soul destroying, wondering if there is a recurrence. I went through the same 6 years after my first cancer. Unfortunately there is nothing you can do other than try and keep busy to try and not think about it too much until you have something definitive. I did have a second occurrence but there was definitely a way forward with good results although it did not feel like it at the time. I have my fingers crossed for you that your tests come back negative. Sending you positive thoughts.
Lyn
Sophie66
Hi Chris.
Thank you.
Scan over, no point worrying, just distractions until I get the results.
Thank you, for, fingers crossed,
Take care, best wishes, Jeanie x
Thank you Maz.
I know I'm not alone.
I'm sorry for your struggles, it can be so hard, so debilitating and so demoralising.
But got to keep on going, keep trying to be ok with what we've got.
It did help me posting on here and getting replies.
Stay strong and good luck to you, take care, Jeanie x
Hi Lyn.
Thank you.
I think I'm going to be ok.
It has really helped me having someone to share with who understands.
I wish no one would have to go through this. I have to go with whatever happens next but I don't have to worry about it all of the time, won't change anything.
Thank you for hoping my results are negative and for the positive thoughts.
Take care and all tge best, Jeanie x
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