Hello, my husband has base of tongue and lymph node cancer - T4N1M0 and has had 29 out of 35 radiotherapy treatments and 2 out of 3 chemo treatments so far. He is really unwell with it all. Terrible throat pain, coughing up blood in phlegm, dysphagia, sickness, red raw on neck, can hardly speak He’s hunched over in pain. He’s now on Fentanyl patches whilst also having oramorph and dissolvable paracetamol. Peg tube feeding. Nothing orally. The Oncologist saw him today and is cancelling last chemo. Dr said not everyone has the last chemo so not to worry. Dr wanted to stop radiotherapy but my husband said no. He asked if he stopped radiotherapy would this be a bad outcome and Dr didn’t answer. Has anyone else experienced this? And what was the outcome? So worried please help x
Hi. My last chemo was cancelled as you’ve been told it’s quite common. Radiotherapy is the main course of treatment chemo is a top up it helps make the tumour responsive to radiotherapy but as u said it’s common for us not to have all the doses. . I m 7 years post treatment so try not to worry.
Hazel zx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
That’s lovely to hear that you’re 7 years post treatment. Thank you we feel more reassured about missing last chemo. Just hope he can make it to the end of radiotherapy.
Hi Hopepy87, I'm just over a year out of treatment, and I missed my last 2 chemo sessions due to being in hospital and too unwell to see them through..
Loz (61)
Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive..
Hi Hopepy87
I can't help with the chemo as I avoided it. Just wanted to send you both a virtual hug
I'm glad he's trying to finish the RT. That is the main treatment....the chemo is used to make the cancer more sensitive to it.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi he will do one day at a time. I did 35 radiotherapy sessions the last 2 weeks were hard but day by day I got there he will as well. I can’t recall anyone not completing radio. Even during Covid we had people who caught Covid but still had radiotherapy. Hugs from me.
Hazel xx
Hazel aka RadioactiveRaz
My blog is www.radioactiveraz.wordpress.com HPV 16+ tonsil cancer Now 6 years post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help
2 videos I’ve been involved with raising awareness of HNC and HPV cancers
Dr wanted to stop radiotherapy but my husband said no
I’m glad he’s trying to get through. He was prescribed that extra week for a reason. Even if it means he might need a short stay in hospital afterwards it will be worth it.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Thank you for your reply and glad to hear you’re doing well x
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