Hi everyone:) getting very anxious.

Wasabi 2 days ago

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i have posted in ACC group too, hope its ok pasting same thing on here too, getting anxious.

Just abit of a backstory:

i was diagnosed with pleomorphic adenoma on my left sumandibular gland. Had an MRI done which determined tumour to be around 8/9mm indeterminate lesion, fast forward had a fine needle biopsy which suggested benign pleomorphic adenoma. Did a repeat Ultrasound in february 2025 confirmed that the tumour remains stable and hasn't grown. However i been experiencing alot of tenderness when i touch the tumour and throbbing/shooting pain around that area, and seems like it is getting more intense by the day. repeat MRI scan was suggested. Radiologist is saying that the tumour does not look like a typical pleomorphic adenoma at all despite the earlier biopsy results. Since the tenderness is not a symptom of PA and considering i been in pain, surgery was recommended.

just wanted to see if anyone has had a similar experience where biopsy comes back as benign but post surgery it turns out to be completely something else ie a malignancy? Other than tenderness and on/off throbbing/shooting pain in the area where tumour is i haven't noticed anything else.

PFJTHS 1 day ago

I see nobody has answered, but to give you an answer that you may not want to hear. Yes. I had an enlarged lymph node which had an U/S and needle biopsy. Both suggested that there was no cancer. My ENT surgeon still wanted to remove the node and the pathology confirmed HPV+ SCC.

Unfortunately the needle biopsy can be a little like a needle in a haystack as if it does not hit the right spot it can miss the cancer. A surgical process can excise much more material for the pathologist to examine.

In my case I had no pain or tenderness - just a lump that stayed around for a couple of weeks. It took a further few years to actually find the primary, but I do have a very unusual cancer pathway.

Peter

See my profile for more details of my convoluted journey

Wasabi 6 hours ago in reply to PFJTHS

Hi Peter,

Thanks very much for your reply, yes i gathered that too that the FNA is not always reliable, not sure why not move to surgery where possible skipping FNA all together, and do histology instead. It seems that FNA just gives false security, the more i research, the more i come across different stories how FNA results suggest “benign” but in the end it turns out “malignant”

got around 6 weeks to go till surgery, wish it was next week already, time is dragging.

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Hi everyone:) getting very anxious.