Hi
I had surgery July 2024 to remove tonsils, tongue base and a neck dissection. Luckily everything was removed with good margins and I was told I needed no further treatment, just close monitoring.
I had a baseline scan in September and then a F2F with my consultant in December followed by another MRI. 6 weeks later and I still haven’t had results of the December MRI. I’ve just been told my MRI is ‘routine’ and not to expect the results quickly. I’ve also been told that they only expect to give me MRIs every 6 moths.
this seems much less thorough than most of you on the forum and I’ve found it very unsettling. For me there’s no discussion of having eg a PET scan. What are your experiences?
thanks
I had an MRI of my lungs as I had incidental nodes at first scan which could have been there for years and in repeat MRI scan were same size so will get yearly check with MRI.
Same here but on CT. I just had the two scans and was offered no more. Still alive though
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
These pulmonary nodules are very common after a chest infection. I had two bouts of childhood pnuemonia.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wondered about the small micro cells they don’t see on scan, couldn’t they be cancer, don’t they watch for those?
Yes that’s what follow up is for. They are too small to see on scan so there is little point in scanning. They show up only on histology.
Radiotherapy kills them
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
There are so many people on here now I sometimes lose track of the treatment folk have had. Do you think you might be able to pop a short treatment history down in your profile? It would help no end.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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