Pet scan results

  • 10 replies
  • 82 subscribers
  • 261 views

Dad finished radiotherapy in October for tonsil cancer, on Wednesday he had the 3 months pet scan to see if all gone or spread. He has been asked to go into see his consultant on Wednesday and he is very scared that has not worked, is this normal to be called in? He is a private consultant but treatment was nhs

  • It is normal to be called in for results. I was called in for both my post-treatment CT and PET scan results. 

    PET was required because the CT scan showed "something" in my chest nodes. PET was unable to differentiate between cancerous activity and infection/inflammation (again, apparently very normal).

    After PET it was a bronchoscopy and I was given the all clear over the phone for that.

    Was told by my specialists that typically they won't give scan results out over the phone so, whilst it's easier said than done, my advice would be not to worry at this stage. 

    All the best.

  • HI

    I was called in for PET/CT results, my first 3 monthly  review done in tandem

    Peter

  • Even if good news are you called in?

  • So even if good news are called in?

  • Even if good news are you called in?

    Yes. Most of us were. 
    Sometimes there is a hiccup like mine but all’s well in the and. I had a hot spot but on biopsy there was no cancer there. 
    My oncologist told me there is an increasing consensus that 12week scans are too early.  has pointed out that radiologists reading PETs sometimes find it difficult to differentiate between active inflammation and cancer. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thank you so much. So pleased you all ok 

  • Thank you so much

  • Yes I was called in for my post treatment results - complete metabolic response Blush

    Our clinicians are human and I think the quite like the ability to give positive news after having to deliver devastating news earlier in our journeys.

    Peter
    See my profile for more details of my convoluted journey
  • Hi yes perfectly  normal .Like  the others have said the oncologist s give us the bad news so it’s only fair that they give us the good news. It’s not  news I would want delivered over the phone either way. Mine was 18 weeks after treatment as my trust didnt do them at 12 weeks as they say it’s too early to scan as hot spots can still be around p. So although I had to waitb18 weeks for my pet ct scan I was ok with that as I knew from the start the wait would be that long. 

    best wishes finger x all ok 

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/