Tiredness

Spider3 said:

! Is this what usually happens ,please tell me I'm not going bonkers!! Is this normal for the treatment I've had ? Please advise , Mark 

It certainly was normal for me and for another three weeks yet, before the fog started lifting very slowly. I don’t think it matters much about your sleep rhythms at this stage. 
By six weeks I was getting g back into sleeping better. 
Just go with the flow. I used to read half the night tucked into bed with the feeding pump going. Nothing wrong with watching tele if you’re not up to reading. 

Hello Mark

Yes I'm afraid that's all totally normal. You're at just about the worst stage for side effects - they don't stop when treatment does - but hang on to the fact that they should start to improve soon. 

Have you asked your team about the mucus? A nebuliser might help - my hospital ENT dept loaned me one - and you could try sleeping sitting up with a lot of pillows. My lovely partner actually made me a sloping wooden frame to lean back on in bed. 

Sending love & solidarity, and best wishes for your recovery in the New Year

Catriona

Spider! I finished my last RT Dec 13th.. "68!" Year I was born!! Lol... But I can go to bed@9pm and sleep until 3 pm! My nights are weird waking up and tossing... Just don't feel comfortable.. The mucus is so fun, almost want to spit it on the wall! My whole C chapter is kind of a weird blur.. *pinky-hug*, we got this.. Happy Holidays!

Hi Mark

My sleep patterns went awry post treatment...spent some nights...quite a few... playing computer games for a couple of hours until morphine zonked me....eventually my doc put me on a short course of low dose zopiclone sleeping tabs...helped immensely....things do go back to some sort of normality...takes time.

Peter

Hi Mark as others have said  fatigue is par for  the course. Treatment continues to work weeks after it’s finished it’s a cumulative effect. Make sure you’re getting sufficient hydration and nutrition. I was told 2500 calories and 1-3 litres of liquid each and every day by any way I could keep  on top if medication as well. I watched trashy box sets  I couldn’t concentrate on reading or anything else. Recovery can be a marathon not a sprint treatment is brutal listen to your body. You’ll get there.
blog below might help.

Hazel . . 

I think I slept for most of the month following treatment.  Fortunately my mucus was not too bad but I did use a nebuliser and a humidifier to give some relief for my post treatment symptoms.  I still have broken sleep 11 months down the road due to dry mouth and having to use biotine a couple of times during the night.  That is manageable.

Yes that’s normal. I felt I slept better sitting up on the couch. Nights were difficult die to the mucous and the accumulated lack of sleep made it feel worse .  Make sure you’re warm. I found sleeping in a cool room made the coughing worse. 

RadioactiveRaz said:

I was told 2500 calories and 23 litres of liquid each and every day

I'm hoping that 23 litres is one of Hazel's famous typos  

Oops you know me so well. Just keeping everyone on their toes. Will amend 2-3 litres of water. 

H x

Good evening Mark, I'm afraid to say that this is normal after treatment, etc. I just slept when I could, so don't worry if you sleep during the day. I even went on sleeping tablets for a while because my doctor said I must try to get my sleep pattern back. You will find that the zombie state will disappear as you come off your meds and the radio/chemo side effects normalize. I was always active but during this period i could hardly walk in the garden because of fatigue so i just sat and watched tv etc until i felt up to doing more. Hope you have a good Christmas. Take care.

                                                                                          Chris. x