Feeding tube is In

  • 9 replies
  • 82 subscribers
  • 269 views

Ive spent the weekend in hospital having my feeding tube fitted, I was not expecting it to be quite so painful but I know it's for the best & hopefully the pain is short lived.

Tomorrow is my first day of radiotherapy, so please keep me in your thoughts xx

  • Hi Loopyliz

    Having the tube is a real benefit and you will soon get used to it. I'm 12 weeks post radiotherapy now and still rely on mine. You will forget it's there after a while.

    Good luck with your radiotherapy, it can seem like a long journey at the beginning but trust me, the weeks fly by.

    Hope everything goes ok.

  • Hi Loopyliz, the tube will be a bit painful for a few days, make sure you keep on top of it with painkillers. The feeding tubes are well worth having, if eating becomes difficult during or after your treatment, it will take all the worry out of not eating. Good luck for today, stick with us, we are all here to help you along the way, any worries or questions just ask, and of course always keep your team up to date, on how you are.

    Ray. 

  • Tomorrow is my first day of radiotherapy, so please keep me in your thoughts xx

    Good luck Liz 

    It's the first step to being cancer free 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Hi Rich, I am 8 weeks post treatment for tongue and neck cancer and I’m still relying on my rig. I just wondered what you are able to eat as my diet is mainly liquid soup custard etc and I’m finding anything else a challenge 

    Sue 

  • Hi Loopy

    I had a PEG fitted, pain for a few days then OK...keep on top of any pain with meds....watch out for any infections....feeding tubes are life savers.

    Make sure you have plenty of pain meds to cover weekends and bank hols....if something goes wrong it usually happens when nobody is available....

    Good luck with the treatment, keep the forum updated with your progress.

    Peter

  • Thanks guys & I'm happy to say that my first RT went well, hopefully the rest will follow x

  • That’s good. One ticked off. I was fascinated. I watched every change of the beam and listened to every click and whine of the gantry. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Community Champion badge
  • Great stuff....how's the feeding tube pain...easing off I hope

    Peter

  • Thinking positive thoughts about your treatment. The tube hurt like hell for me for a few weeks. The nurse said to me it will feel like a horse kicked me in the gut. She was right