Tastebuds

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Hi everyone

i was diagnosed with Adenocarcinoma in May 24, I have had aright side neck dissection and am currently in my last week of radiotherapy Grinning, my taste has completely gone and I find eating awful, will the tastebuds comeback?

  • will the tastebuds comeback?

    Yes mine did. It was six months before I was happy with the ways things tasted. It wasn’t a linear improvement though. Some days things went backwards. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi yes usually we do mostly regain taste. I’m an odd ball I can’t tolerate any spice what so ever. But I’m 6 years post treatment and can live without chillies and curry. 

    hazel. 

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Hi Len

    T2N1M0 Tonsil cancer HPV16 plus Chemoradio finished last year in June... taste and appetite now about 90%... In Paphos at present..Cypriot food isn't half bad 

    .

    Peter 

  • Finished treatment for tonsil and neck cancer in June (6 weeks radiotherapy and 2 sessions of chemo). My tastebuds were obliterated after the first chemo. Came back very slightly - albeit I couldn't really eat because of sore mouth, and then disappeared after the second chemo again. At same time my hearing also went really bad.

    Was maybe 4 weeks or so after the second chemo they were back to around 80%. They're fully back now, and although my mouth and general eating has improved greatly I'm still not able to eat things like curry - even milder ones as they feel like lava on my tongue.

    They will come back for you too I'm sure. 

  • I am now 7 months post treatment.  Taste returned after around 6 - 8 weeks.  Muted, but I knew what I was eating.  It is a bit better now.  With our treatments recover is a marathon and not a sprint.  You will get to enjoy food again - just not everything you may have enjoyed previously.

    Peter
    See my profile for more details of my convoluted journey
  • We’re flying in to Paphos on Monday.  If you fancy something a bit different food wise you might enjoy the 7 Orchids restaurant in the Alexander the Great hotel. Asian food and always really tasty. Need to book if you’re not a resident of the hotel.

    Luz

  • That should of course be Liz.  Finger trouble!

  • Hi Liz 

    Will have a look....we are home on Monday....had our Asian themed night yesterday in the Hotel...l enjoyed it immensely. . 

    Have a great holiday....weather is fantastic....

    I'm enjoying the swimming... PEG feeding tube hole now barely noticeable 

    Peter 

  • Flying home from Pathos tomorrow!

    My taste started to return with a bang a week or so before we headed out. Phew! that’s about 2 months post surgery. Although it is a little stop/start like others have said. Sweet has been the slowest to return and yesterday’s baclava was a bit like cardboard.