Morning all,so here I am again,firstly I want to say thank you for your replies to my last post on here,I came on to offload and then disappeared again,consumed by worry and fear so I also want to say sorry for not replying,your support helps so much.
Anyway to cut a long story short,after scans revealed my Husband’s tumour started growing rapidly again,his consultant had many knock backs from surgeons who wouldn’t operate but has managed to find one that will.I have very mixed emotions about this,asking myself why none of the others would do it!! Putting those particular emotions aside I face new ones as the operation is taking place on the 27th of September,providing the artery blocking test is successful on the 26th….he is having “radical” surgery as they put it,which is a complex craniofacial resection resulting in the loss of his right eye,he will be ventilated in icu over the weekend then if all goes to plan he will undergo reconstructive surgery on the Monday,involving using a graft from his thigh to make a “flap” for eye.We are both terrified in our own obvious different ways,I can’t sleep for worrying and feel constantly sick,my heart is breaking for him.If all is successful they say it will give him a couple (maybe more) of years extra life all be it a “different” life.
so after about 17 months of my first posting on here,it’s been a rocky old road and this is where we are at,oh we also had to cancel our Rhodes holiday which should have been on the 23rd,not too concerned about that,much bigger things to worry about but just wanted to say thanks to you all for the travel insurance recommendations,I was transparent with them so hopefully they pay us out because we are definitely going to need that money in the next few months,I need to find accommodation near the hospital as he will be in for approximately 2 weeks and I can’t drive there.
Anyway I’m waffling now,but thanks once again for listening and letting me get things off my chest
love and hugs to you all xxx
Hello again and thank you again for finding the courage to share what's happened. It always seems worse actually seeing it in print before you.
his consultant had many knock backs from surgeons who wouldn’t operate but has managed to find one that will.I have very mixed emotions about this,asking myself why none of the others would do it!!
It's complicated but one of the main reasons is skill. If you don't do surgery like this all the ti e you just don't have that skill. I don't know where you have found somebody but I can throw an example at you. The surgeons at the head and neck unit at the Royal Marsden do amazing surgery. They have been featured in a documentary that aired on the TV. They are often criticised for the high risk surgery they do. Is it worth it for just a few extra months of life? Is is cost effective? These are arguments beyond me though. So please don't waste time on the what if's over that.
It is huge surgery and I'm glad that you have found somebody brave enough to be brave along with you both and give you a chance.
Sending you both healing hugs xxx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
