Hi
I have just been diagnosed with basal cell adenocarcinoma,
Last October I found a small lump in my neck, I had biopsies, which came back as benign, but they wanted to remove it as it could turn to cancer.
It was a tumer in my saliva gland,
After several scans and cancelled operations they have now said its in to deep and to large to remove.
If they tried it would cause disfigurment and they wouldn't be able to remove it all,
They have also said because of the way it's growing and the speed it is now a cancer,
Basal cell adenocarcinoma a rare cancer in the paritoid gland .
In a few weeks I'm having 6 weeks of radiotherapy mon to Friday every week.
But after that there is no more treatment I can have,
The tumer is T4a N0 M0 not completely sure what that means but I'm not thinking it's good.
Has anyone else heard of this cancer,
Thanks mjj64
Hey,
I'm not sure if mine was Basal Cell Adenocarcinoma, but mine was a salivary duct adenocarcinoma cancer that manifested in my Parotid gland (pT4a N3b M0).
The cancer had spread to the lymph nodes in my neck and my facial nerve on the affected side by the time i had surgery to remove the cancerous bits. I also had radiotherapy x 33 sessions to the affected head and neck area.
This 'cured' me. My follow up scans came back clear. This was January 23.
I have, however, had hip pain for the last few months, so my ENT consultant sent me for a PET scan which has revealed that the cancer has now spread to my hips, spine, liver and lungs.
So, although we cleared my initial cancer, it's now back with a vengeance and there's nothing really can be done for me, so I'm onto palliative care.
Not sure how much i could help but let me know if you have any questions.
I hope your treatment goes well!
Ad
Hi
So sorry to hear this.
It does sound very much the same,
They cannot operate becuase it's in to deep and wrapped around the facial nerve,
So 30 radiotherapy sessions over 6 weeks,
Starting 17th June,
It's a scary world, I'm happy to continue talking with you,
If this doesn't work there is nothing else for me either, they did say it would shrink but unlikely it would be cured,
They would even answer the question if it doesn't work how long would I have,
There's nothing anyone can say or do to make it go away,
And you can't stay strong all of the time,
Good luck with everything and stay in touch
Maria
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