Hello all.
Completed carbon-ion therapy late April for my 4th recurrence.
While waiting for the MRI follow up I felt something was not right and advanced the whole thing.
They found growths in back of my throat, in a bone in my ear, many in my neck.
Waiting biopsy to confirm but that's a formality in my opinion.
The pain is now ramping up. I'm already on oxycodon and supplementing it with paracetamol with codeine, ibuprofen, diclofenac and anything I can get my hands on basically. Rotating them.
I will see the professor (surgeon) on Tuesday to see what can be done.
My question is has this happened to you? It usually popped up in one place and was dealt with with surgery and the last with re-irradiation as it was inoperable.
This time it's everywhere in my head and neck. Suddenly and growing fast. My ENT said she never saw something grow so fast. Only one, back of throat, grew 5mm in 6 days. I wonder if this is the final countdown. It feels like it. No idea where the primary is
I don't know actually what I'm asking. It's just moving sooo fast and of course the doctors, with one exception, are moving sooo slow.
I guess I'm wondering why if I broke my leg, they'd fix it same day. With this I know they will discuss with tumour board, make plans for whatever treatment and I will probably start treatment in 4-6 weeks. This is what my experience has been so far.
In light of the fact that I can literally see them growing daily do you think they might do things a bit quicker? It's beginning to close my throat, I can't eat, drinking anything is massively painful. I am losing my will, I'm falling asleep randomly and feel constantly tired.
Anyone ever been fast-tracked? I'm always told that I'm not the only one with cancer and they are busy. I feel like I am dying rapidly. It would sound dramatic but this isn't my first time. It's the 5th and by far the most painful and fast and it's in many places.
Hi Larrykins
I’m so sorry the situation is dire. The only thing I can think of is this vaccine trial that’s in all the media today. But I suspect that takes time you don’t have.
I think you could be looking at hospice care to at least keep you comfortable
That seems the reality of it
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
I wrote a blog about my cancer. just click on the link below
https://todaymycoffeetasteslikechristmasincostarica.com
Good evening Larrykins, so sorry to be reading this, you have been through so much, im sure you will be treated very quickly due to your history, as Dani mentioned the new vaccine might be an option for you, let's hope so. You deserve a break. I wish you all the very best.
Chris. x
Its sometimes not easy but its worth it !
Hi Larrykins
So sorry to read your post , You are definitely not being dramatic…. I tried all the pain meds nothing worked . the only thing that took the edge off was Fentanyl patches I stayed on them for months .
I hope your Cancer Nurse Specialist or the Mcmillan team could support you in finding out more information.
Hopes for treatment to start soon
Debbie
