Malignant unknown origin.

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Hi, hoping someone can help me please. I was recently diagnosed with a 5.2cm lesion on my medistinum and a 1cm lesion on my right lung, however I also have a large, hard lump on my neck (right side) and have been told that it is a malignant lump of unknown origin. I have a meeting with a clinical team on Wednesday regarding treatments etc but wondered if anyone else has ever been diagnosed with the Malignancy of unknown origin cancer and how it went. Thank you.

Beesuit 7 months ago

Hi Allipally

There is a separate forum for cancer of unknown primary. You might get better support there

https://community.macmillan.org.uk/cancer_types/unknown-primary-cancer-forum

Have you any pathology results for that lump on your neck? Head and neck cancer is usually squamous cell carcinoma.
Best wishes

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

I BLOGGED MY TREATMENT

Macmillan Support Line - 0808 808 00 00 7 days a week between 8am-8pm

Allipally 7 months ago in reply to Beesuit

Thank you, I didn't realise.

PFJTHS 7 months ago

Hi Allipally

I was CUP for some time before they finally found a primary. In H&N cancers it is not unheard of to not know where the primary is. I waited 4 years before they were able to deal with my primary. Last week I had my scan results and all is clear.

I was of the CUP forum but there was little going on so no longer check on it. Maybe it has picked up a bit since then.

Peter

See my profile for more details of my convoluted journey

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