started on my journey back in April 23 SCC base of tongue had 11 teeth removed plus 35 appointments with a RT machine but the cancer remains was told no chemotherapy for me as I've had 2 heart attacks so now started on immunotherapy my question is my mouth is so sore my tongue I can only describe as a slug that someone has put salt on ,not eaten food since nov23 everything is now peg fed and I'm unable to speak ...my question is once immunotherapy has stop will my mouth come back to working a bit at least so I can speak I'm only 55
Hi Paul. Can you get help from your SALT and oncologist? RT has damaged your salivary glands badly and you need something to moisten your mouth… a saliva replacement if some kind. What have you been offered so far?
Im not sure immunotherapy will have much if an effect in your salivary function. Please talk to your team. Get some proper answers from them and don’t leave till you understand exactly.
It seems such a terribly long time to have no intervention from them.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
