Mums treatment

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Hi all, I've been reading everyone's stories and experiences since my mums diagnosis of oropharyngeal cancer. My mum has been very lucky in that her treatment was started almost instantly, from initially seeing the gp on the 14th of feb and being given her diagnosis on the 7th of March, she has just completed her 6 weeks of radiotherapy/ 2x cisplatin yesterday!! 

She had been in hospital for the last week due to dehydration as she is unable to tolerate anything really orally due to the thick phlegm she has at the back of her throat. Her rig really has been life saving as she was only 51kg when she started her treatment! So calories through her ensures are what is keeping her going. 

One of the main issues she is having only in the last few days is blistering to her neck? We were told this is totally normal and not to be concerned, I am just wondering if anyone had any tips on making it more comfortable for her? And also how long this is expected to last? 

Thank you for reading and please any other tips on supporting my mum through the recovery stage are very welcomed! 

  • Hi there. I found sudacream helped to heal my neck, but it was very sore. It lasts a couple of weeks. Not nice but it heals and her neck will be as smooth as a baby’s bottom as the radiotherapy zaps any downy hair. 
    I hope your mum has a speedy recovery and she can be comfortable. She’s lucky to have you looking out for her. 
    take care 

    Rachel 

  • Hi Lyndsay

    Radiotherapy team gave me loads of Epimax cream for neck area and Difflam mouthwash for pain....helped immensely...use pain meds as needed.... do not suffer in silence....patients have different recovery journeys....some recover quicker than others but it can be a slow process.

    Things will improve.

    Peter.

  • Hi a if you look at my blog I spent the last 2 weeks of radiotherapy with a polymem bandage on my neck and for the actual treatment I was wrapped in hospital grade cling film round my neck. So please don’t worry it’s can happen. The minute treatment finishes the neck starts to heal usually I had the polymem bandage on for a further 2 weeks. I haven’t had any issues since I do use factor 50 sun cream every day on my face and neck.Ask your mums radiotherapy team in Monday what can they do,tell her not to take any of the skin off  

    Hazel x

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now 5 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help  

  • You should get Flamazine from the hospital. Once RT stops there is no residual effect on the skin and it should be much better in a week. Flamazine will really help. It’s designed for radiation burns. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I wrote a blog about my cancer. just click on the link below 

    https://todaymycoffeetasteslikechristmasincostarica.com 

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Lyndsayxo, well done to your mum finishing treatment, now recovery back to health. She will have ups and downs on the way, but she will get there. I agree with Dani on the Flamazine, my neck was in an awful state, and Flamazine cleared it up in a very short time. Any worries or questions, just ask, we are all here to help, if we can.

    Ray.

  • Thank you so much, I have some sudocrem from my toddler so will definitely give it a try!! 

  • Hi Peter, 

    she does have the difflam so I will make sure she's using it, will also ask about the epimax. Thanks for your reply.

  • Hi hazel, 

    thanks for your reply. Mum only developed them in the last 3 days of RT so hopefully will heal quickly, she has a review with her team on Thursday so will definitely ask about it. X

  • Hi Dani, 

    Thanks for your reply, I will definitely ask for the flamazine when we go to her review this week! Hopefully it heals quick for her! 

  • Hi ray, 

    Thanks for your reply, im sure it will be a long road I'm just so happy she's managed to get through the initial 6 weeks, she's been a star. I will definitely ask for the flamazine this week.