Tube feeding

Sorry for mistakes I'm trying to type this on my phone. There isn't a holiness Just a hot line 

Hi Gail. I had an NG tube. It didn’t get in the way and didn’t stop me eating. It’s a little unpleasant, fleetingly, while it goes in but not painful. It’s easy to manage. I’d go for it as he does need calories and protein to heal. Hope this helps 

Hi he certainly hasn’t failed if he has an ng tube. He’s done well to get this far but I credit  my ng tube allowing me to recover like Dani really well without the worry of having enough nutrition mine was my lifesaver it’s not a competition tell him it’s a needs must. Yiu need a minimum of 2500 caloeies every day to include in my case 85 gram of protein 2-3 litres of water every day to get through recovery. The actual fitting is a few moments of discomfort and yes yiu can continue to eat whike it’s in. I had mine for last z3 weeks of treatment and first 3 weeks of  recovery then I continued to sip the ensure drinks it’s a case if food is fuel there’s very little pleasure in the first few months. But I made a great recovery all down to ng tube . So ring the hot line. 
Hazel 

Thank you for your reply. I've phoned and he's going to speak with a dietician tomorrow. He's also worried because atm he's suffering with a lot of mucas is is retching a lot esp in the night. I think hes worried it might dislodge. 

Thank you for your reply. I've phoned and he's going to speak with a dietician tomorrow. He's also worried because atm he's suffering with a lot of mucas is is retching a lot esp in the night. I think hes worried it might dislodge

Hi mine didn’t  move at all l t us kno ho he gets on. Get him to try soda water or flat Diet Coke to try and disperse the mucus. 
aHazel 

I managed without a tube until last day of treatment but then had to be hospitalised as I became unable to keep anything down due to nausea. They gave me an NG tube which was actually brilliant - it takes away all the worry, effort & pain for swallowing. I  got home after a few days (with stronger anti-nausea meds) and kept the tube in for a couple more weeks, using overnight pump feeding. The tube doesn't hurt, and you can go about your normal life when it's not connected to the pump. It takes a bit of getting used to - the hospital will give you & your husband training in how to use it  - but it was well worth it for me. Good luck! 

Thankyou for that. I think he's now resigned himself that this is the way forward and like you say its going to take away the worry too of not getting enough calories x

Good evening Gail, he definately needs more nutrition otherwise he will end up in hospital , i had the same taste issues with taste but thankfully i had a PEG( and still do ) i can swallow thin liquids like water tea and can even manage the basic cup a soups. I think they will offer him an NG tube rather than a PEG as its a lot more simple to fit so less worry about any minor surgery. Im afraid the food supplements are not the most appetising but are the quickest way of maintaining weight , at least if it goes through the tube he will not have to taste it. Good luck with the dietician. Take care.

                                                                               Chris x

Thank you Chris. You have certainly been through it. I'm hoping they offer him an NG so it will take away the anxiety of eating. I will keep.everyone posted.