Anyone advise

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Hi everyone

So hubby just finnished his first week of intense chemo TPF.   Stayed in velindra for 5 days but has absolutely wrecked him to the point they will not be giving him second dose. 

Since chemo he has lost one half stone in weight cannot eat,  in totaly agony with stomach and back to point he cannot open bowels.  Had scan at hospital no blockage nothing        has anyone else experianced this. 

If he eats hes in agony also smell and taste gone.  Starts radiotherapy two weeks time. 

  • Hi  

    So sorry to hear your husband is suffering so much. TPF is really heavy duty chemo and the side effects are awful. I can’t recall anybody else here having this for some time. The usual chemo is Cisplatin without the other two and given during RT. I’ll search around for you. 
    Having said that, I have a friend who had Fluorouracil alongside her cisplatin and made a pretty good recovery. She must be over three years clear now 
    Is he still in hospital? It sounds like he should be. Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • This is the most recent. 

    https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/diagnosis-and-treatment/264587/sinus-cancer/1925369

       The  search function isn’t very good here but it works better on a phone. 
    if you tap the lens at the  top left ( not the search in the middle lower down) and put in  TPF there are a few threads. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi dani

    Thankyou so much that be great. 

    Nurses also surprised he was having tpf treatment.

    Killed veins in one arm also.

    Hes been back and for last two weeks but nope hes home. X

  • I remember you posted  about a lot if this nearly two weeks ago. How can they leave him like this for so long? 
    I know his PEG placement was postponed. Did he get one in the end? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • No still no peg.   Was told thursday they not sure if giving peg through stomach now due to all the pain hes in.  Possibly one down nose but no sign of either x

  • Possibly one down nose but no sign of either x

    I managed with one of those for 8 weeks so don’t despair. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi I like Dani managed a ng tube for 6 weeks so any help just shout out we can offer tips. Hooe he gets sorted soon too is a strong  cocktail of chemo. Do you have a date for radiotherapy to start? Re bowels has he been given laxido or movicol you can take 6-8 sachets to clear impacted  poo ? But presume that’s been tried?

    Hazel 

    Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.
  • Hi hazel and thankyou. 

    Hesvhaving his mask made tuesday but we was told start in 2 wezks last thursday x.    Hes had two enimas movicol.  Laxido, another one begining with l and s cant remember names.  Watching him has been horrendous. Even with enimas nothing x

  • Hi it must be if you’ve got the movicol/laxidos  it does say on back  that you can take multiple sachets. Is he on opiates for pain relief as thru cause constipation. 
    I really  hope you get some answers soon. The mask making, tip ask them to cut eyeholes in it does help. 

    Hazel xx

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.