Palifermin

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hhm. anyone with any info on this for relieving mucositis?

  • It’s an injection I’ve heard used in stem cell transplants but I’ve never heard of it being used in oral mucositis. Ask your oncologist?

    Have you been busy on Google? Rofl

    Edit. I looked it up for you. Contraindicated in anything but haematological malignancy. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Additionally I’ve looked up TBI. Total body irradiation which is given maybe only once or for a maximum of three days. Maybe the drugs effect is short acting and it’s hugely expensive.  We get hit thirty times. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Have you been busy on Google? 

    not really, these things just seem to jump out at me.. lol

    I was just looking for recipe ideas, and all of a sudden.. ooh, what's this then? It just happens.. lol

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • How are you enjoying your break? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • still can't enjoy a proper bath yet.. Peg needing constant cleaning .. 4 times a day.. is just keeps oozing and gunking.. so even though I'm trying to relax there's so much to keep my eye on..

    Loz (62)

    Oropharyngeal right tongue base T2N2bM0 squamous cell carcinoma p16 positive.. 

  • Yuk! Poor you. Ask if you can bathe anyway. Will it leak inwards? Probably not but what do I know? 
    I lovec my bath. I fell asleep in it a few times. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Hi try not to read into everything yes there’s side effects yes you’ll get some of them but no one gets all of them. Worrying and wittering won’t change a thjng baby steps got me through it and one day at a time don’t overthink it. Trust your team. 
    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/